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Tinkering with symptoms, causes and solutions: Tracing the enactments of multiple chronic illnesses in specialised outpatient check-ups

  • Anna Louise Skovgaard*
  • , Marianne Johansson Jørgensen
  • , Tine Tjørnhøj-Thomsen
  • , Mette Terp Høybye
  • *Corresponding author for this work
  • Aarhus University
  • Regionshospitalet Horsens
  • Regionshospitalet Silkeborg

Research output: Contribution to journalJournal articleResearchpeer-review

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Abstract

People living with multiple chronic illnesses and an increasing need for acute care is a global health challenge, which questions the conventional ways of managing illness. A central issue is how medical practices can become more patient-centred and aligned with the everyday life of patients. Communicative strategies for eliciting the patient's goals and preferences are often proposed. In this article, we draw on ethnographic data from fieldwork conducted during 2019-2020 in health-care settings and among people living with multiple chronic illness(es) and repeated acute admissions in Denmark. Inspired by science and technology studies of chronic illness and care, we trace the enactments of illness and illness work in a patient trajectory marked by persistent symptoms and medical complexity. We analyse three medical encounters, and we show how 'tinkering' with clinical signs and utterances in each encounter constantly enacts new versions, shaping how the patient could and should live with his illness. We argue that specialised outpatient check-ups for these patients must provide space for continuous tinkering with the concrete effects of illness in everyday life.

Original languageEnglish
JournalSociology of Health and Illness
Volume46
Issue number4
Pages (from-to)627-643
ISSN0141-9889
DOIs
Publication statusPublished - May 2024

Funding

We also thank The Fund for the Advancement of Health Research in Central Denmark Region, Aarhus University and The Research Fund, Regional Hospital Central Jutland, for financial support of the research.

Keywords

  • chronic disease
  • clinical encounters
  • multimorbidity
  • outpatients
  • patient complexity
  • patient-centred care
  • pulmonary disease
  • Humans
  • Middle Aged
  • Patient-Centered Care
  • Male
  • Multiple Chronic Conditions/psychology
  • Anthropology, Cultural
  • Chronic Disease/psychology
  • Denmark
  • Outpatients/psychology
  • Female
  • Communication

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