Abstract
People living with multiple chronic illnesses and an increasing need for acute care is a global health challenge, which questions the conventional ways of managing illness. A central issue is how medical practices can become more patient-centred and aligned with the everyday life of patients. Communicative strategies for eliciting the patient's goals and preferences are often proposed. In this article, we draw on ethnographic data from fieldwork conducted during 2019-2020 in health-care settings and among people living with multiple chronic illness(es) and repeated acute admissions in Denmark. Inspired by science and technology studies of chronic illness and care, we trace the enactments of illness and illness work in a patient trajectory marked by persistent symptoms and medical complexity. We analyse three medical encounters, and we show how 'tinkering' with clinical signs and utterances in each encounter constantly enacts new versions, shaping how the patient could and should live with his illness. We argue that specialised outpatient check-ups for these patients must provide space for continuous tinkering with the concrete effects of illness in everyday life.
| Original language | English |
|---|---|
| Journal | Sociology of Health and Illness |
| Volume | 46 |
| Issue number | 4 |
| Pages (from-to) | 627-643 |
| ISSN | 0141-9889 |
| DOIs | |
| Publication status | Published - May 2024 |
Funding
We also thank The Fund for the Advancement of Health Research in Central Denmark Region, Aarhus University and The Research Fund, Regional Hospital Central Jutland, for financial support of the research.
Keywords
- chronic disease
- clinical encounters
- multimorbidity
- outpatients
- patient complexity
- patient-centred care
- pulmonary disease
- Humans
- Middle Aged
- Patient-Centered Care
- Male
- Multiple Chronic Conditions/psychology
- Anthropology, Cultural
- Chronic Disease/psychology
- Denmark
- Outpatients/psychology
- Female
- Communication
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