The Impact of Hypoglycaemia on the Quality of Life of Parents of Children, Adolescents and Young Adults with Type 1 Diabetes

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Abstract

Introduction Hypoglycaemia in children and young adults with type 1 diabetes (T1D) can have significant negative implications on the lives of their parents. The impact of hypoglycaemia on the quality of life (QoL) of parents to children and young adults with T1D is not fully understood.
Research question What areas of life are important to parents of children and young adults with T1D, and how are they impacted by hypoglycaemia?
Design The study was a qualitative survey. Parents were asked to identify areas of life of importance to them and provide written responses on how hypoglycaemia impact these areas of life.
Sample Parents of children and young adults with T1D (n=74) from Denmark, Germany, The Netherlands, and United Kingdom.
Data collection and analysis Demographic, clinical and written response data were collected through an online survey platform. Written responses were coded and analyzed using thematic analysis.
Results Parents identified seven domains of life: Sleep, Work, Family Life, Leisure time and Socializing, Everyday Life, Partnership and Emotional Well-Being. Parents described how their child’s hypoglycaemia had an adverse impact on all areas of life of importance to them. Across domains, fear of hypoglycaemia and excessive planning to prevent hypoglycaemia were repeatedly reported by parents.
Original languageEnglish
Publication dateJul 2021
Publication statusPublished - Jul 2021
EventThinking Qualitatively Virtual Conference : The World is Watching -
Duration: 5. Jul 202110. Jul 2021
https://tq-2021.ok.ubc.ca/

Conference

ConferenceThinking Qualitatively Virtual Conference
Period05/07/202110/07/2021
Internet address

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