The Danish National Register of assisted reproductive technology: content and research potentials

Line Riis Jølving*, Karin Erb, Bente Mertz Nørgård, Jens Fedder, Michael Due Larsen

*Corresponding author for this work

Research output: Contribution to journalJournal articleResearchpeer-review

Abstract

The Danish National Register of assisted reproductive technology (ART) was initially established in 1994. The register comprises complete information on all ART procedures in public and private clinics in Denmark from 2013 and onwards, including baseline information on the cause of infertility and a number of health-related patient characteristics. The register enables monitoring and research on infertility treatment and reproductive topics in single women or couples seeking assisted reproduction, and the register is thus a key component of the Danish health information system within human reproduction. We aimed to provide an updated description of the register including advantages and pitfalls when using the register for reproductive epidemiological research, and a description of the accessibility for researchers. The Danish ART register is a valuable tool for epidemiological research. However, the inherent strengths and limitations ought to be in perspective when designing studies and interpreting the study results. Reports with annually aggregated data on ART treatments, can be accessed on the Danish Health Data Authority web page and researchers may obtain access to individual pseudonomized data via secure servers at the Danish Health Data Authority and Statistics Denmark.

Original languageEnglish
JournalEuropean Journal of Epidemiology
Volume36
Issue number4
Pages (from-to)445-452
ISSN0393-2990
DOIs
Publication statusPublished - Apr 2021

Keywords

  • Assisted reproductive technology
  • Clinical epidemiology
  • Danish health registries
  • Medical record linkage
  • Population based registries
  • Reproductive epidemiology

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