Satisfaction with information provided to Danish cancer patients: validation and survey results

Lone Ross; Morten Aagaard Petersen; Anna Thit Johnsen; Louise Hyldborg Lundstrøm; Mogens Groenvold

doi:10.1016/j.pec.2013.05.018

Satisfaction with information provided to Danish cancer patients: validation and survey results

Lone Ross, Morten Aagaard Petersen, Anna Thit Johnsen, Louise Hyldborg Lundstrøm, Mogens Groenvold

Research output: Contribution to journal › Journal article › Research › peer-review

Abstract

OBJECTIVES: To validate five items (CPWQ-inf) regarding satisfaction with information provided to cancer patients from health care staff, assess the prevalence of dissatisfaction with this information, and identify factors predicting dissatisfaction.

METHODS: The questionnaire was validated by patient-observer agreement and cognitive interviews. The prevalence of dissatisfaction was assessed in a cross-sectional sample of all cancer patients in contact with hospitals during the past year in three Danish counties.

RESULTS: The validation showed that the CPWQ performed well. Between 3 and 23% of the 1490 participating patients were dissatisfied with each of the measured aspects of information. The highest level of dissatisfaction was reported regarding the guidance, support and help provided when the diagnosis was given. Younger patients were consistently more dissatisfied than older patients.

CONCLUSIONS: The brief CPWQ performs well for survey purposes. The survey depicts the heterogeneous patient population encountered by hospital staff and showed that younger patients probably had higher expectations or a higher need for information and that those with more severe diagnoses/prognoses require extra care in providing information.

PRACTICAL IMPLICATIONS: Four brief questions can efficiently assess information needs. With increasing demands for information, a wide range of innovative initiatives is needed.

Original language	English
Journal	Patient Education and Counseling
Volume	93
Issue number	2
Pages (from-to)	239-47
Number of pages	9
ISSN	0738-3991
DOIs	https://doi.org/10.1016/j.pec.2013.05.018
Publication status	Published - Nov 2013
Externally published	Yes

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10.1016/j.pec.2013.05.018

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@article{305457e1a8e546a99f40bbeab4dae1a5,

title = "Satisfaction with information provided to Danish cancer patients: validation and survey results",

abstract = "OBJECTIVES: To validate five items (CPWQ-inf) regarding satisfaction with information provided to cancer patients from health care staff, assess the prevalence of dissatisfaction with this information, and identify factors predicting dissatisfaction.METHODS: The questionnaire was validated by patient-observer agreement and cognitive interviews. The prevalence of dissatisfaction was assessed in a cross-sectional sample of all cancer patients in contact with hospitals during the past year in three Danish counties.RESULTS: The validation showed that the CPWQ performed well. Between 3 and 23% of the 1490 participating patients were dissatisfied with each of the measured aspects of information. The highest level of dissatisfaction was reported regarding the guidance, support and help provided when the diagnosis was given. Younger patients were consistently more dissatisfied than older patients.CONCLUSIONS: The brief CPWQ performs well for survey purposes. The survey depicts the heterogeneous patient population encountered by hospital staff and showed that younger patients probably had higher expectations or a higher need for information and that those with more severe diagnoses/prognoses require extra care in providing information.PRACTICAL IMPLICATIONS: Four brief questions can efficiently assess information needs. With increasing demands for information, a wide range of innovative initiatives is needed.",

keywords = "Adolescent, Adult, Aged, Aged, 80 and over, Cross-Sectional Studies, Denmark, Female, Humans, Interviews as Topic, Male, Middle Aged, Neoplasms, Patient Education as Topic, Patient Satisfaction, Questionnaires",

author = "Lone Ross and Petersen, {Morten Aagaard} and Johnsen, {Anna Thit} and Lundstr{\o}m, {Louise Hyldborg} and Mogens Groenvold",

year = "2013",

month = nov,

doi = "10.1016/j.pec.2013.05.018",

language = "English",

volume = "93",

pages = "239--47",

journal = "Patient Education and Counseling",

issn = "0738-3991",

publisher = "Elsevier",

number = "2",

}

TY - JOUR

T1 - Satisfaction with information provided to Danish cancer patients

T2 - validation and survey results

AU - Ross, Lone

AU - Petersen, Morten Aagaard

AU - Johnsen, Anna Thit

AU - Lundstrøm, Louise Hyldborg

AU - Groenvold, Mogens

PY - 2013/11

Y1 - 2013/11

N2 - OBJECTIVES: To validate five items (CPWQ-inf) regarding satisfaction with information provided to cancer patients from health care staff, assess the prevalence of dissatisfaction with this information, and identify factors predicting dissatisfaction.METHODS: The questionnaire was validated by patient-observer agreement and cognitive interviews. The prevalence of dissatisfaction was assessed in a cross-sectional sample of all cancer patients in contact with hospitals during the past year in three Danish counties.RESULTS: The validation showed that the CPWQ performed well. Between 3 and 23% of the 1490 participating patients were dissatisfied with each of the measured aspects of information. The highest level of dissatisfaction was reported regarding the guidance, support and help provided when the diagnosis was given. Younger patients were consistently more dissatisfied than older patients.CONCLUSIONS: The brief CPWQ performs well for survey purposes. The survey depicts the heterogeneous patient population encountered by hospital staff and showed that younger patients probably had higher expectations or a higher need for information and that those with more severe diagnoses/prognoses require extra care in providing information.PRACTICAL IMPLICATIONS: Four brief questions can efficiently assess information needs. With increasing demands for information, a wide range of innovative initiatives is needed.

AB - OBJECTIVES: To validate five items (CPWQ-inf) regarding satisfaction with information provided to cancer patients from health care staff, assess the prevalence of dissatisfaction with this information, and identify factors predicting dissatisfaction.METHODS: The questionnaire was validated by patient-observer agreement and cognitive interviews. The prevalence of dissatisfaction was assessed in a cross-sectional sample of all cancer patients in contact with hospitals during the past year in three Danish counties.RESULTS: The validation showed that the CPWQ performed well. Between 3 and 23% of the 1490 participating patients were dissatisfied with each of the measured aspects of information. The highest level of dissatisfaction was reported regarding the guidance, support and help provided when the diagnosis was given. Younger patients were consistently more dissatisfied than older patients.CONCLUSIONS: The brief CPWQ performs well for survey purposes. The survey depicts the heterogeneous patient population encountered by hospital staff and showed that younger patients probably had higher expectations or a higher need for information and that those with more severe diagnoses/prognoses require extra care in providing information.PRACTICAL IMPLICATIONS: Four brief questions can efficiently assess information needs. With increasing demands for information, a wide range of innovative initiatives is needed.

KW - Adolescent

KW - Adult

KW - Aged

KW - Aged, 80 and over

KW - Cross-Sectional Studies

KW - Denmark

KW - Female

KW - Humans

KW - Interviews as Topic

KW - Male

KW - Middle Aged

KW - Neoplasms

KW - Patient Education as Topic

KW - Patient Satisfaction

KW - Questionnaires

U2 - 10.1016/j.pec.2013.05.018

DO - 10.1016/j.pec.2013.05.018

M3 - Journal article

C2 - 23806817

VL - 93

SP - 239

EP - 247

JO - Patient Education and Counseling

JF - Patient Education and Counseling

SN - 0738-3991

IS - 2

ER -

Satisfaction with information provided to Danish cancer patients: validation and survey results

Abstract

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