PROMs need PRIMs: Standardised Outcome Measures Lack the Preference-Sensitivity Needed in Person-Centred Care

Mette Kjer Kaltoft; Jack Dowie

doi:10.3233/SHTI190031

PROMs need PRIMs: Standardised Outcome Measures Lack the Preference-Sensitivity Needed in Person-Centred Care

Mette Kjer Kaltoft
, Jack Dowie^*

^*Corresponding author for this work

Research Unit of General Pratice

Research output: Chapter in Book/Report/Conference proceeding › Article in proceedings › Research › peer-review

Abstract

A growing number of condition-specific standard outcome sets have been developed by the International Consortium for Health Outcomes Measurement in pursuit of 'value-based care'. These sets embrace many Patient-Reported Outcome Measures (PROMs), reflecting a simultaneous commitment to 'patient-centred care'. However, none of these sets embody recognition of the preference-sensitive nature of the decisions that eventually generate the outcome database. 'Patient-Reported Importance Measures' (PRIMs) are the valid source of the required preferences. The ICHOM Stroke standard set is input into a hypothetical Multi-Criteria Decision Analysis-based decision support tool to provide simple confirmation that PROMs should be preference-mix adjusted as well as case-mix adjusted. PROMs need PRIMs if value-based care is to be personalised values-based care.

Original language	English
Title of host publication	Health Informatics Vision : From Data via Information to Knowledge
Editors	John Mantas, Arie Hasman, Parisis Gallos, Aikaterini Kolokathi, Mowafa S. Househ, Joseph Liaskos
Volume	262
Publisher	IOS Press
Publication date	2019
Pages	118-121
ISBN (Print)	9781614999867
ISBN (Electronic)	978-1-61499-987-4
DOIs	https://doi.org/10.3233/SHTI190031
Publication status	Published - 2019

Series	Studies in Health Technology and Informatics
ISSN	0926-9630

Funding

The software at https:// ale.rsyd.dk was funded in a project to develop decision support tools (Danish National Board of Health/SATS J.nr. 1-1010/116/27).

Keywords

Multi-Criteria Decision Analysis
Patient Reported Outcome Measures
Preference-sensitive decisions
Value-based care

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10.3233/SHTI190031

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Kaltoft, Mette Kjer ; Dowie, Jack. / PROMs need PRIMs : Standardised Outcome Measures Lack the Preference-Sensitivity Needed in Person-Centred Care. Health Informatics Vision: From Data via Information to Knowledge. editor / John Mantas ; Arie Hasman ; Parisis Gallos ; Aikaterini Kolokathi ; Mowafa S. Househ ; Joseph Liaskos. Vol. 262 IOS Press, 2019. pp. 118-121 (Studies in Health Technology and Informatics).

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abstract = "A growing number of condition-specific standard outcome sets have been developed by the International Consortium for Health Outcomes Measurement in pursuit of 'value-based care'. These sets embrace many Patient-Reported Outcome Measures (PROMs), reflecting a simultaneous commitment to 'patient-centred care'. However, none of these sets embody recognition of the preference-sensitive nature of the decisions that eventually generate the outcome database. 'Patient-Reported Importance Measures' (PRIMs) are the valid source of the required preferences. The ICHOM Stroke standard set is input into a hypothetical Multi-Criteria Decision Analysis-based decision support tool to provide simple confirmation that PROMs should be preference-mix adjusted as well as case-mix adjusted. PROMs need PRIMs if value-based care is to be personalised values-based care.",

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Kaltoft, MK & Dowie, J 2019, PROMs need PRIMs: Standardised Outcome Measures Lack the Preference-Sensitivity Needed in Person-Centred Care. in J Mantas, A Hasman, P Gallos, A Kolokathi, MS Househ & J Liaskos (eds), Health Informatics Vision: From Data via Information to Knowledge. vol. 262, IOS Press, Studies in Health Technology and Informatics, pp. 118-121. https://doi.org/10.3233/SHTI190031

PROMs need PRIMs: Standardised Outcome Measures Lack the Preference-Sensitivity Needed in Person-Centred Care. / Kaltoft, Mette Kjer ; Dowie, Jack.
Health Informatics Vision: From Data via Information to Knowledge. ed. / John Mantas; Arie Hasman; Parisis Gallos; Aikaterini Kolokathi; Mowafa S. Househ; Joseph Liaskos. Vol. 262 IOS Press, 2019. p. 118-121 (Studies in Health Technology and Informatics).

Research output: Chapter in Book/Report/Conference proceeding › Article in proceedings › Research › peer-review

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N2 - A growing number of condition-specific standard outcome sets have been developed by the International Consortium for Health Outcomes Measurement in pursuit of 'value-based care'. These sets embrace many Patient-Reported Outcome Measures (PROMs), reflecting a simultaneous commitment to 'patient-centred care'. However, none of these sets embody recognition of the preference-sensitive nature of the decisions that eventually generate the outcome database. 'Patient-Reported Importance Measures' (PRIMs) are the valid source of the required preferences. The ICHOM Stroke standard set is input into a hypothetical Multi-Criteria Decision Analysis-based decision support tool to provide simple confirmation that PROMs should be preference-mix adjusted as well as case-mix adjusted. PROMs need PRIMs if value-based care is to be personalised values-based care.

AB - A growing number of condition-specific standard outcome sets have been developed by the International Consortium for Health Outcomes Measurement in pursuit of 'value-based care'. These sets embrace many Patient-Reported Outcome Measures (PROMs), reflecting a simultaneous commitment to 'patient-centred care'. However, none of these sets embody recognition of the preference-sensitive nature of the decisions that eventually generate the outcome database. 'Patient-Reported Importance Measures' (PRIMs) are the valid source of the required preferences. The ICHOM Stroke standard set is input into a hypothetical Multi-Criteria Decision Analysis-based decision support tool to provide simple confirmation that PROMs should be preference-mix adjusted as well as case-mix adjusted. PROMs need PRIMs if value-based care is to be personalised values-based care.

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KW - Patient Reported Outcome Measures

KW - Preference-sensitive decisions

KW - Value-based care

U2 - 10.3233/SHTI190031

DO - 10.3233/SHTI190031

M3 - Article in proceedings

C2 - 31349280

AN - SCOPUS:85068565065

SN - 9781614999867

VL - 262

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EP - 121

BT - Health Informatics Vision

A2 - Mantas, John

A2 - Hasman, Arie

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A2 - Kolokathi, Aikaterini

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PB - IOS Press

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Kaltoft MK , Dowie J. PROMs need PRIMs: Standardised Outcome Measures Lack the Preference-Sensitivity Needed in Person-Centred Care. In Mantas J, Hasman A, Gallos P, Kolokathi A, Househ MS, Liaskos J, editors, Health Informatics Vision: From Data via Information to Knowledge. Vol. 262. IOS Press. 2019. p. 118-121. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI190031

PROMs need PRIMs: Standardised Outcome Measures Lack the Preference-Sensitivity Needed in Person-Centred Care

Abstract

Funding

Keywords

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