OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions

Karine Toupin-April, Jennifer L Barton, Liana Fraenkel, Alexa Meara, Linda C Li, Peter Brooks, Maarten de Wit, Dawn Stacey, France Légaré, Beverley Shea, Anne Lyddiatt, Cathie Hofstetter, Robin Christensen, Marieke Scholte Voshaar, Maria E Suarez-Almazor, Annelies Boonen, Tanya Meade, Lyn March, Janet Elizabeth Jull, Willemina CampbellRieke Alten, Suvi Karuranga, Esi M Morgan, Ayano Kelly, Jessica Kaufman, Sophie Hill, Lara J Maxwell, Dorcas Beaton, Yasser El-Miedany, Shikha Mittoo, Susan J Bartlett, Jasvinder A Singh, Peter S Tugwell

Research output: Contribution to journalJournal articleResearchpeer-review

Abstract

OBJECTIVE: The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials.

METHODS: A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements.

RESULTS: OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains.

CONCLUSION: A revised core domain set will undergo further consensus-building.

Original languageEnglish
JournalJournal of Rheumatology
Volume46
Issue number10
Pages (from-to)1409-1414
ISSN0315-162X
DOIs
Publication statusPublished - Oct 2019

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Rheumatology
Consensus
Outcome Assessment (Health Care)
Interviews

Cite this

Toupin-April, K., Barton, J. L., Fraenkel, L., Meara, A., Li, L. C., Brooks, P., ... Tugwell, P. S. (2019). OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions. Journal of Rheumatology, 46(10), 1409-1414. https://doi.org/10.3899/jrheum.181071
Toupin-April, Karine ; Barton, Jennifer L ; Fraenkel, Liana ; Meara, Alexa ; Li, Linda C ; Brooks, Peter ; de Wit, Maarten ; Stacey, Dawn ; Légaré, France ; Shea, Beverley ; Lyddiatt, Anne ; Hofstetter, Cathie ; Christensen, Robin ; Scholte Voshaar, Marieke ; Suarez-Almazor, Maria E ; Boonen, Annelies ; Meade, Tanya ; March, Lyn ; Jull, Janet Elizabeth ; Campbell, Willemina ; Alten, Rieke ; Karuranga, Suvi ; Morgan, Esi M ; Kelly, Ayano ; Kaufman, Jessica ; Hill, Sophie ; Maxwell, Lara J ; Beaton, Dorcas ; El-Miedany, Yasser ; Mittoo, Shikha ; Bartlett, Susan J ; Singh, Jasvinder A ; Tugwell, Peter S. / OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions. In: Journal of Rheumatology. 2019 ; Vol. 46, No. 10. pp. 1409-1414.
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title = "OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions",
abstract = "OBJECTIVE: The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials.METHODS: A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements.RESULTS: OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains.CONCLUSION: A revised core domain set will undergo further consensus-building.",
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Toupin-April, K, Barton, JL, Fraenkel, L, Meara, A, Li, LC, Brooks, P, de Wit, M, Stacey, D, Légaré, F, Shea, B, Lyddiatt, A, Hofstetter, C, Christensen, R, Scholte Voshaar, M, Suarez-Almazor, ME, Boonen, A, Meade, T, March, L, Jull, JE, Campbell, W, Alten, R, Karuranga, S, Morgan, EM, Kelly, A, Kaufman, J, Hill, S, Maxwell, LJ, Beaton, D, El-Miedany, Y, Mittoo, S, Bartlett, SJ, Singh, JA & Tugwell, PS 2019, 'OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions', Journal of Rheumatology, vol. 46, no. 10, pp. 1409-1414. https://doi.org/10.3899/jrheum.181071

OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions. / Toupin-April, Karine; Barton, Jennifer L; Fraenkel, Liana; Meara, Alexa; Li, Linda C; Brooks, Peter; de Wit, Maarten; Stacey, Dawn; Légaré, France; Shea, Beverley; Lyddiatt, Anne; Hofstetter, Cathie; Christensen, Robin; Scholte Voshaar, Marieke; Suarez-Almazor, Maria E; Boonen, Annelies; Meade, Tanya; March, Lyn; Jull, Janet Elizabeth; Campbell, Willemina; Alten, Rieke; Karuranga, Suvi; Morgan, Esi M; Kelly, Ayano; Kaufman, Jessica; Hill, Sophie; Maxwell, Lara J; Beaton, Dorcas; El-Miedany, Yasser; Mittoo, Shikha; Bartlett, Susan J; Singh, Jasvinder A; Tugwell, Peter S.

In: Journal of Rheumatology, Vol. 46, No. 10, 10.2019, p. 1409-1414.

Research output: Contribution to journalJournal articleResearchpeer-review

TY - JOUR

T1 - OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions

AU - Toupin-April, Karine

AU - Barton, Jennifer L

AU - Fraenkel, Liana

AU - Meara, Alexa

AU - Li, Linda C

AU - Brooks, Peter

AU - de Wit, Maarten

AU - Stacey, Dawn

AU - Légaré, France

AU - Shea, Beverley

AU - Lyddiatt, Anne

AU - Hofstetter, Cathie

AU - Christensen, Robin

AU - Scholte Voshaar, Marieke

AU - Suarez-Almazor, Maria E

AU - Boonen, Annelies

AU - Meade, Tanya

AU - March, Lyn

AU - Jull, Janet Elizabeth

AU - Campbell, Willemina

AU - Alten, Rieke

AU - Karuranga, Suvi

AU - Morgan, Esi M

AU - Kelly, Ayano

AU - Kaufman, Jessica

AU - Hill, Sophie

AU - Maxwell, Lara J

AU - Beaton, Dorcas

AU - El-Miedany, Yasser

AU - Mittoo, Shikha

AU - Bartlett, Susan J

AU - Singh, Jasvinder A

AU - Tugwell, Peter S

PY - 2019/10

Y1 - 2019/10

N2 - OBJECTIVE: The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials.METHODS: A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements.RESULTS: OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains.CONCLUSION: A revised core domain set will undergo further consensus-building.

AB - OBJECTIVE: The Outcome Measures in Rheumatology (OMERACT) Shared Decision Making (SDM) Working Group aims to determine the core outcome domain set for measuring the effectiveness of SDM interventions in rheumatology trials.METHODS: A white paper was developed to clarify the draft core domain set. It was then used to prepare for interviews to investigate reasons for lack of consensus on it and to suggest further improvements.RESULTS: OMERACT scientists/clinicians (n = 13) and patients (n = 10) suggested limiting the core domain set to outcome domains, removing process domains, and clarifying remaining domains.CONCLUSION: A revised core domain set will undergo further consensus-building.

U2 - 10.3899/jrheum.181071

DO - 10.3899/jrheum.181071

M3 - Journal article

C2 - 30709963

VL - 46

SP - 1409

EP - 1414

JO - Journal of Rheumatology

JF - Journal of Rheumatology

SN - 0315-162X

IS - 10

ER -

Toupin-April K, Barton JL, Fraenkel L, Meara A, Li LC, Brooks P et al. OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions. Journal of Rheumatology. 2019 Oct;46(10):1409-1414. https://doi.org/10.3899/jrheum.181071