Managing daily life among people with advanced cancer living at home: Responding to uncertainties related to shifting abilities, home care and treatment

Jesper Larsen Mærsk*, Malcolm Cutchin, Karen la Cour

*Corresponding author for this work

Research output: Contribution to journalJournal articleResearchpeer-review

Abstract

Introduction: People with advanced cancer are increasingly expected to live at home and manage the consequences of illness and
treatment. The purpose of this study was to explore how people with advanced cancer manage the influence of home care and
treatment on occupations and habits.
Method: Constructivist grounded theory guided the collection and analysis of data from 22 people with advanced cancer. Data
were collected using in-depth interviews and participant diaries.
Findings: Uncertainty about abilities to engage in occupation and home care and treatment delivery disrupted participants’ daily
life. Participants employed various strategies to manage uncertainties and to preserve a sense of agency and control.
Conclusions: This study provides insights into how people with advanced cancer manage and respond to the impact of illness,
home care, and treatment in their daily life. The findings may aid occupational therapists to develop and deliver interventions that
allow their patients to maintain a sense of agency in their daily life.
Translated title of the contributionHåndtering af hverdagslivet med fremskreden kræft i eget hjem: Reaktioner på usikkerhed forbundet med skiftende funktionsevne, hjemmepleje og behandling
Original languageEnglish
JournalBritish Journal of Occupational Therapy
ISSN0308-0226
DOIs
Publication statusE-pub ahead of print - 12. Oct 2020

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