Patient-reported outcomes encourage communication about psychosocial issues in patients with COPD

Louise Muxoll Grønhaug*, Ingeborg Farver-Vestergaard, Anders Løkke Ottesen, Jannie Christina Frølund

*Corresponding author for this work

Research output: Contribution to journalConference abstract in journalResearchpeer-review

Abstract

Person-centered care may improve symptom management and quality of life among patients with Chronic Obstructive Pulmonary Disease (COPD). Patient-reported outcomes measures (PROMs) can support identification of individual needs and enhance person-centered care.

This study aimed to explore patients’ experience of the application of a generic version of the European Organization for Research and Treatment of Cancer-Quality of Life Questionnaire Palliative (EORTC-PAL) to support identification of and communication about individual needs.

Patients with moderate-severe COPD from the respiratory outpatient clinic at Vejle Hospital, Denmark took part in semi-structured telephone interview, analyzed inductively based on qualitative content analysis.

Patients (n=9) had a mean age of 66.4 years (±10.1) and 56% were male. All patients would like the EORTC-PAL to be part of routine care, as they found that it supported identification of significant needs related to COPD and initiated conversations about individual issues. Some patients elaborated that EORTC-PAL prepared them to be honest about psychosocial issues. When health professionals addressed those important, but sensitive issues, patients willingly shared their feelings of loneliness, sadness, inadequacy or low self-worth for the first time. This increased awareness about wellbeing and symptom burden.

From the patient perspective, using PROMs to identify care needs in an outpatient clinic enable patients’ readiness to reflect upon and discuss individual needs, often related to psychosocial issues. With the purpose of providing holistic care, health professionals need to follow up on patients’ responses by addressing the identified issues.
Original languageEnglish
Article numberOA4878
JournalEuropean Respiratory Journal
Volume62
Issue numberSuppl 67
ISSN0903-1936
DOIs
Publication statusPublished - Sept 2023
EventERS International Congress 2023 - Milan, Italy
Duration: 9. Sept 202313. Sept 2023

Conference

ConferenceERS International Congress 2023
Country/TerritoryItaly
CityMilan
Period09/09/202313/09/2023

Bibliographical note

Oral presentation and E-poster at ERS 23

Keywords

  • PROM
  • Palliation
  • EORTC-PAL

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