Development of technology to support patient involvement in the kidney transplantation process

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Abstract

Development of technology to support patient involvement in the kidney transplantation process
Background
Kidney transplantation is the treatment of choice for terminal renal insufficiency. Kidney recipients report higher quality of life than dialysis patients because of fewer side effects, complications and restrictions in their daily lives. After transplantation the possible side effects of the immunosuppressant treatment are outweighed by the increased quality of life. Renal transplantation is a milestone, but the whole process is based on close contact with the health services, through outpatient visits and during possible hospitalization.

Objective
To develop new ways of involving kidney recipients in the kidney transplant process, supported by telemedicine.

Method
Participant observation and semi-structured interviews were conducted with 20 18 kidney recipients in order to investigate experiences during the transplant process. Additionally, focus group interview with eight health care professionals were completed. Data analysis was inspired by Ricoeur's interpretation theory on three levels: Naive reading; structural analysis and critical interpretation and discussion. The investigation led to workshops with patients, health care professionals and relevant stakeholders to identify patient’s needs in the transplant process.

Results
An App is needed to gather information and tools relevant for the transplant process. The most relevant functions were: Actual transplant activity, knowledge relevant to the transplant process, organizing of individual out-patient controls, education of patients meeting the health system and electronic correspondence between patients and health care professionals.

Conclusion and implication for practice
The App and the corresponding workflows will be designed and tested in the final phases of the project, in order to structure the transplant process with respect to the patient’s everyday life.
Translated title of the contributionUdvikling af teknologi til facilitering af patientinvolvering i nyretransplantationsforløbet
Original languageEnglish
Publication date14. Jun 2018
Publication statusPublished - 14. Jun 2018
EventNordic Conference in Nursing Research - Oslo and Akershus University College of Applied Sciences, Oslo, Norway
Duration: 13. Jun 201815. Jun 2018

Conference

ConferenceNordic Conference in Nursing Research
LocationOslo and Akershus University College of Applied Sciences
Country/TerritoryNorway
CityOslo
Period13/06/201815/06/2018

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