Dealing with challenges in taking active part in care after hospitalization due to exacerbation in chronic obstructive pulmonary disease: experiences of patients and their relatives

Research output: Contribution to conference without publisher/journalPosterResearchpeer-review

Abstract

Background:

Living with severe chronic obstructive pulmonary disease (COPD) is often characterized by recurrent acute exacerbations (AECOPD) and increased need for hospitalization. After hospital discharge for AECOPD, many patients experience prolonged deterioration and difficulties in maintaining daily activities. Patients’ participating in own care is crucial but little is known about patients’ and their relatives’ experienced challenges and obstacles to succeed herewith.

Aim:

The aim of this study was to explore COPD patients’ and their relatives’ experiences of taking active part in their own care within a year after hospitalization.

Methods:

An ethnographic inspired field study was conducted among fifteen COPD patients and twelve relatives. Data were collected by participant observation and informal interviews at hospital. This was supplemented by in-depth interviews six and twelve months after discharge. A phenomenological-hermeneutical approach inspired by Ricoeurs’ theory of interpretation guided data analysis.

Results:

Preliminary results indicate that taking active part in COPD care implies managing periods with increased vulnerability created by the transition situation of hospital discharge, as well as transition situations occurring over time such as changed medication, home-oxygen therapy, job situation, domestic conditions, and family problems. Furthermore, analysis reveals efforts to navigate constantly normalizing everyday life while at the same time dealing with healthcare professionals’ claims to take active part in care.

Relevance to clinical practice:

Healthcare professionals can learn from patients’ and relatives’ experiences to obtain insight into challenges in taking active part in their own care. The gained insight could be useful in improving future follow-up interventions after hospitalization.

Original languageEnglish
Publication date16. Jun 2016
Publication statusPublished - 16. Jun 2016
EventNordic Conference in Nursing Research: Methods and Networks for the future - Sverig, Stockholm, Sweden
Duration: 15. Jun 201617. Jun 2016
Conference number: 5th

Conference

ConferenceNordic Conference in Nursing Research
Number5th
LocationSverig
CountrySweden
CityStockholm
Period15/06/201617/06/2016

Keywords

  • Chronic obstructive pulmonary disease (COPD)
  • Self-management
  • outpatient care
  • Qualitative research
  • Multimorbidity

Cite this

@conference{5c21e39db4a94666b1b350dd3c2d0b0f,
title = "Dealing with challenges in taking active part in care after hospitalization due to exacerbation in chronic obstructive pulmonary disease: experiences of patients and their relatives",
abstract = "Background: Living with severe chronic obstructive pulmonary disease (COPD) is often characterized by recurrent acute exacerbations (AECOPD) and increased need for hospitalization. After hospital discharge for AECOPD, many patients experience prolonged deterioration and difficulties in maintaining daily activities. Patients’ participating in own care is crucial but little is known about patients’ and their relatives’ experienced challenges and obstacles to succeed herewith. Aim:The aim of this study was to explore COPD patients’ and their relatives’ experiences of taking active part in their own care within a year after hospitalization.Methods:An ethnographic inspired field study was conducted among fifteen COPD patients and twelve relatives. Data were collected by participant observation and informal interviews at hospital. This was supplemented by in-depth interviews six and twelve months after discharge. A phenomenological-hermeneutical approach inspired by Ricoeurs’ theory of interpretation guided data analysis. Results:Preliminary results indicate that taking active part in COPD care implies managing periods with increased vulnerability created by the transition situation of hospital discharge, as well as transition situations occurring over time such as changed medication, home-oxygen therapy, job situation, domestic conditions, and family problems. Furthermore, analysis reveals efforts to navigate constantly normalizing everyday life while at the same time dealing with healthcare professionals’ claims to take active part in care. Relevance to clinical practice:Healthcare professionals can learn from patients’ and relatives’ experiences to obtain insight into challenges in taking active part in their own care. The gained insight could be useful in improving future follow-up interventions after hospitalization.",
keywords = "Chronic obstructive pulmonary disease (COPD), Self-management, outpatient care, Qualitative research, Multimorbidity",
author = "Andersen, {Ingrid Charlotte} and Thomsen, {Thora Grothe} and Bruun Poul and Uffe B{\o}dtger and Lise Hounsgaard",
year = "2016",
month = "6",
day = "16",
language = "English",
note = "null ; Conference date: 15-06-2016 Through 17-06-2016",

}

Dealing with challenges in taking active part in care after hospitalization due to exacerbation in chronic obstructive pulmonary disease: experiences of patients and their relatives. / Andersen, Ingrid Charlotte ; Thomsen, Thora Grothe; Poul, Bruun; Bødtger, Uffe; Hounsgaard, Lise.

2016. Poster session presented at Nordic Conference in Nursing Research, Stockholm, Sweden.

Research output: Contribution to conference without publisher/journalPosterResearchpeer-review

TY - CONF

T1 - Dealing with challenges in taking active part in care after hospitalization due to exacerbation in chronic obstructive pulmonary disease: experiences of patients and their relatives

AU - Andersen, Ingrid Charlotte

AU - Thomsen, Thora Grothe

AU - Poul, Bruun

AU - Bødtger, Uffe

AU - Hounsgaard, Lise

PY - 2016/6/16

Y1 - 2016/6/16

N2 - Background: Living with severe chronic obstructive pulmonary disease (COPD) is often characterized by recurrent acute exacerbations (AECOPD) and increased need for hospitalization. After hospital discharge for AECOPD, many patients experience prolonged deterioration and difficulties in maintaining daily activities. Patients’ participating in own care is crucial but little is known about patients’ and their relatives’ experienced challenges and obstacles to succeed herewith. Aim:The aim of this study was to explore COPD patients’ and their relatives’ experiences of taking active part in their own care within a year after hospitalization.Methods:An ethnographic inspired field study was conducted among fifteen COPD patients and twelve relatives. Data were collected by participant observation and informal interviews at hospital. This was supplemented by in-depth interviews six and twelve months after discharge. A phenomenological-hermeneutical approach inspired by Ricoeurs’ theory of interpretation guided data analysis. Results:Preliminary results indicate that taking active part in COPD care implies managing periods with increased vulnerability created by the transition situation of hospital discharge, as well as transition situations occurring over time such as changed medication, home-oxygen therapy, job situation, domestic conditions, and family problems. Furthermore, analysis reveals efforts to navigate constantly normalizing everyday life while at the same time dealing with healthcare professionals’ claims to take active part in care. Relevance to clinical practice:Healthcare professionals can learn from patients’ and relatives’ experiences to obtain insight into challenges in taking active part in their own care. The gained insight could be useful in improving future follow-up interventions after hospitalization.

AB - Background: Living with severe chronic obstructive pulmonary disease (COPD) is often characterized by recurrent acute exacerbations (AECOPD) and increased need for hospitalization. After hospital discharge for AECOPD, many patients experience prolonged deterioration and difficulties in maintaining daily activities. Patients’ participating in own care is crucial but little is known about patients’ and their relatives’ experienced challenges and obstacles to succeed herewith. Aim:The aim of this study was to explore COPD patients’ and their relatives’ experiences of taking active part in their own care within a year after hospitalization.Methods:An ethnographic inspired field study was conducted among fifteen COPD patients and twelve relatives. Data were collected by participant observation and informal interviews at hospital. This was supplemented by in-depth interviews six and twelve months after discharge. A phenomenological-hermeneutical approach inspired by Ricoeurs’ theory of interpretation guided data analysis. Results:Preliminary results indicate that taking active part in COPD care implies managing periods with increased vulnerability created by the transition situation of hospital discharge, as well as transition situations occurring over time such as changed medication, home-oxygen therapy, job situation, domestic conditions, and family problems. Furthermore, analysis reveals efforts to navigate constantly normalizing everyday life while at the same time dealing with healthcare professionals’ claims to take active part in care. Relevance to clinical practice:Healthcare professionals can learn from patients’ and relatives’ experiences to obtain insight into challenges in taking active part in their own care. The gained insight could be useful in improving future follow-up interventions after hospitalization.

KW - Chronic obstructive pulmonary disease (COPD)

KW - Self-management

KW - outpatient care

KW - Qualitative research

KW - Multimorbidity

M3 - Poster

ER -