Danish Register of chronic obstructive pulmonary disease

Peter Lange, Sandra Søgaard Tøttenborg, Anne Dichmann Sorknæs, Jørgen Steen Andersen, Mette Søgaard, Henrik Nielsen, Reimar Wernich Thomsen, Katrine Abildtrup Nielsen

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Abstract

Aim of database: The Danish Register of Chronic Obstructive Pulmonary Disease (DrCOPD) is a nationwide database aiming to describe the quality of treatment of all patients with chronic obstructive pulmonary disease (COPD) in Denmark.
Study population: DrCOPD comprises data on all patients with a diagnosis of COPD. In the hospital setting, both in- and outpatients are included. In the setting of the general practice (GP), DrCOPD aims to include all patients with a COPD diagnosis who attend an annual control visit for COPD.
Main variables: DrCOPD includes information on forced expiratory volume in 1 second, smoking status, body mass index, dyspnea, treatment modalities such as rehabilitation, smoking cessation, medical treatment, and the use of noninvasive ventilation during hospitalization due to exacerbations. The outcome variables include frequency of readmission and death 30 days after discharge from hospital.
Descriptive data: Since 2008, the registration in the Danish hospitals has gradually become more comprehensive. In 2014, ~90% of 16,106 eligible patients had complete data sets that showed an improvement in the processes describing quality of care, including increased offering of smoking cessation, rehabilitation, and correct treatment with inhaled medication. Data from GPs have been included since 2011, but are still incomplete and comprise only ~20% of all COPD patients seen. The collection of data from GP settings has recently been hampered due to legislative controversies.
Conclusion: In relatively few years, DrCOPD has become increasingly comprehensive and has documented an improvement in the management of COPD in Danish hospitals.
Original languageEnglish
JournalClinical Epidemiology
Volume2016
Issue number8
Pages (from-to)673-678
ISSN1179-1349
Publication statusPublished - 2016

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Chronic Obstructive Pulmonary Disease
Smoking Cessation
General Practice
Databases
Quality of Health Care
Forced Expiratory Volume
Denmark
Registries
Inpatients
Body Mass Index
Outpatients
Smoking

Bibliographical note

Open Access funded by OsteoArthritis Society International

Keywords

  • chronic obstructive pulmonary disease
  • quality of care
  • Aim of database
  • Register

Cite this

Lange, P., Tøttenborg, S. S., Sorknæs, A. D., Andersen, J. S., Søgaard, M., Nielsen, H., ... Abildtrup Nielsen, K. (2016). Danish Register of chronic obstructive pulmonary disease. Clinical Epidemiology, 2016(8), 673-678.
Lange, Peter ; Tøttenborg, Sandra Søgaard ; Sorknæs, Anne Dichmann ; Andersen, Jørgen Steen ; Søgaard, Mette ; Nielsen, Henrik ; Thomsen, Reimar Wernich ; Abildtrup Nielsen, Katrine. / Danish Register of chronic obstructive pulmonary disease. In: Clinical Epidemiology. 2016 ; Vol. 2016, No. 8. pp. 673-678.
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abstract = "Aim of database: The Danish Register of Chronic Obstructive Pulmonary Disease (DrCOPD) is a nationwide database aiming to describe the quality of treatment of all patients with chronic obstructive pulmonary disease (COPD) in Denmark.Study population: DrCOPD comprises data on all patients with a diagnosis of COPD. In the hospital setting, both in- and outpatients are included. In the setting of the general practice (GP), DrCOPD aims to include all patients with a COPD diagnosis who attend an annual control visit for COPD.Main variables: DrCOPD includes information on forced expiratory volume in 1 second, smoking status, body mass index, dyspnea, treatment modalities such as rehabilitation, smoking cessation, medical treatment, and the use of noninvasive ventilation during hospitalization due to exacerbations. The outcome variables include frequency of readmission and death 30 days after discharge from hospital.Descriptive data: Since 2008, the registration in the Danish hospitals has gradually become more comprehensive. In 2014, ~90{\%} of 16,106 eligible patients had complete data sets that showed an improvement in the processes describing quality of care, including increased offering of smoking cessation, rehabilitation, and correct treatment with inhaled medication. Data from GPs have been included since 2011, but are still incomplete and comprise only ~20{\%} of all COPD patients seen. The collection of data from GP settings has recently been hampered due to legislative controversies.Conclusion: In relatively few years, DrCOPD has become increasingly comprehensive and has documented an improvement in the management of COPD in Danish hospitals.",
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Lange, P, Tøttenborg, SS, Sorknæs, AD, Andersen, JS, Søgaard, M, Nielsen, H, Thomsen, RW & Abildtrup Nielsen, K 2016, 'Danish Register of chronic obstructive pulmonary disease', Clinical Epidemiology, vol. 2016, no. 8, pp. 673-678.

Danish Register of chronic obstructive pulmonary disease. / Lange, Peter; Tøttenborg, Sandra Søgaard; Sorknæs, Anne Dichmann; Andersen, Jørgen Steen; Søgaard, Mette; Nielsen, Henrik; Thomsen, Reimar Wernich; Abildtrup Nielsen, Katrine.

In: Clinical Epidemiology, Vol. 2016, No. 8, 2016, p. 673-678.

Research output: Contribution to journalReviewResearchpeer-review

TY - JOUR

T1 - Danish Register of chronic obstructive pulmonary disease

AU - Lange, Peter

AU - Tøttenborg, Sandra Søgaard

AU - Sorknæs, Anne Dichmann

AU - Andersen, Jørgen Steen

AU - Søgaard, Mette

AU - Nielsen, Henrik

AU - Thomsen, Reimar Wernich

AU - Abildtrup Nielsen, Katrine

N1 - Open Access funded by OsteoArthritis Society International

PY - 2016

Y1 - 2016

N2 - Aim of database: The Danish Register of Chronic Obstructive Pulmonary Disease (DrCOPD) is a nationwide database aiming to describe the quality of treatment of all patients with chronic obstructive pulmonary disease (COPD) in Denmark.Study population: DrCOPD comprises data on all patients with a diagnosis of COPD. In the hospital setting, both in- and outpatients are included. In the setting of the general practice (GP), DrCOPD aims to include all patients with a COPD diagnosis who attend an annual control visit for COPD.Main variables: DrCOPD includes information on forced expiratory volume in 1 second, smoking status, body mass index, dyspnea, treatment modalities such as rehabilitation, smoking cessation, medical treatment, and the use of noninvasive ventilation during hospitalization due to exacerbations. The outcome variables include frequency of readmission and death 30 days after discharge from hospital.Descriptive data: Since 2008, the registration in the Danish hospitals has gradually become more comprehensive. In 2014, ~90% of 16,106 eligible patients had complete data sets that showed an improvement in the processes describing quality of care, including increased offering of smoking cessation, rehabilitation, and correct treatment with inhaled medication. Data from GPs have been included since 2011, but are still incomplete and comprise only ~20% of all COPD patients seen. The collection of data from GP settings has recently been hampered due to legislative controversies.Conclusion: In relatively few years, DrCOPD has become increasingly comprehensive and has documented an improvement in the management of COPD in Danish hospitals.

AB - Aim of database: The Danish Register of Chronic Obstructive Pulmonary Disease (DrCOPD) is a nationwide database aiming to describe the quality of treatment of all patients with chronic obstructive pulmonary disease (COPD) in Denmark.Study population: DrCOPD comprises data on all patients with a diagnosis of COPD. In the hospital setting, both in- and outpatients are included. In the setting of the general practice (GP), DrCOPD aims to include all patients with a COPD diagnosis who attend an annual control visit for COPD.Main variables: DrCOPD includes information on forced expiratory volume in 1 second, smoking status, body mass index, dyspnea, treatment modalities such as rehabilitation, smoking cessation, medical treatment, and the use of noninvasive ventilation during hospitalization due to exacerbations. The outcome variables include frequency of readmission and death 30 days after discharge from hospital.Descriptive data: Since 2008, the registration in the Danish hospitals has gradually become more comprehensive. In 2014, ~90% of 16,106 eligible patients had complete data sets that showed an improvement in the processes describing quality of care, including increased offering of smoking cessation, rehabilitation, and correct treatment with inhaled medication. Data from GPs have been included since 2011, but are still incomplete and comprise only ~20% of all COPD patients seen. The collection of data from GP settings has recently been hampered due to legislative controversies.Conclusion: In relatively few years, DrCOPD has become increasingly comprehensive and has documented an improvement in the management of COPD in Danish hospitals.

KW - chronic obstructive pulmonary disease

KW - quality of care

KW - Aim of database

KW - Register

KW - chronic obstructive pulmonary disease

KW - quality of care

KW - Aim of database

KW - Register

M3 - Review

VL - 2016

SP - 673

EP - 678

JO - Clinical Epidemiology

JF - Clinical Epidemiology

SN - 1179-1349

IS - 8

ER -

Lange P, Tøttenborg SS, Sorknæs AD, Andersen JS, Søgaard M, Nielsen H et al. Danish Register of chronic obstructive pulmonary disease. Clinical Epidemiology. 2016;2016(8):673-678.