Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis

Maria A Lopez-Olivo, José B Negrón, Richard J Zogala, Loreto Carmona, Karla Criner, Niti Goel, Laura Gonzalez-Lopez, Francesca Ingegnoli, Amye Leong, Lyn March, Beverly Shea, Vibeke Strand, Peter Tugwell, Tiffany Westrich-Robertson, Natalia V Zamora, Robin Christensen, Maria E Suarez-Almazor

Research output: Contribution to journalJournal articleResearchpeer-review

Abstract

OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.

METHODS: Preliminary data and proposed next steps were outlined and discussed by participants.

RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.

CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.

Original languageEnglish
JournalJournal of Rheumatology
Volume46
Issue number9
Pages (from-to)1164-1167
ISSN0315-162X
DOIs
Publication statusPublished - Sep 2019

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Public Opinion
Qualitative Research
Family Planning Services
Rheumatology
Longitudinal Studies
Outcome Assessment (Health Care)

Cite this

Lopez-Olivo, M. A., Negrón, J. B., Zogala, R. J., Carmona, L., Criner, K., Goel, N., ... Suarez-Almazor, M. E. (2019). Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis. Journal of Rheumatology, 46(9), 1164-1167. https://doi.org/10.3899/jrheum.181076
Lopez-Olivo, Maria A ; Negrón, José B ; Zogala, Richard J ; Carmona, Loreto ; Criner, Karla ; Goel, Niti ; Gonzalez-Lopez, Laura ; Ingegnoli, Francesca ; Leong, Amye ; March, Lyn ; Shea, Beverly ; Strand, Vibeke ; Tugwell, Peter ; Westrich-Robertson, Tiffany ; Zamora, Natalia V ; Christensen, Robin ; Suarez-Almazor, Maria E. / Core Outcome Sets Specifically for Longterm Observational Studies : OMERACT Special Interest Group Update in Rheumatoid Arthritis. In: Journal of Rheumatology. 2019 ; Vol. 46, No. 9. pp. 1164-1167.
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abstract = "OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.METHODS: Preliminary data and proposed next steps were outlined and discussed by participants.RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.",
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Lopez-Olivo, MA, Negrón, JB, Zogala, RJ, Carmona, L, Criner, K, Goel, N, Gonzalez-Lopez, L, Ingegnoli, F, Leong, A, March, L, Shea, B, Strand, V, Tugwell, P, Westrich-Robertson, T, Zamora, NV, Christensen, R & Suarez-Almazor, ME 2019, 'Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis', Journal of Rheumatology, vol. 46, no. 9, pp. 1164-1167. https://doi.org/10.3899/jrheum.181076

Core Outcome Sets Specifically for Longterm Observational Studies : OMERACT Special Interest Group Update in Rheumatoid Arthritis. / Lopez-Olivo, Maria A; Negrón, José B; Zogala, Richard J; Carmona, Loreto; Criner, Karla; Goel, Niti; Gonzalez-Lopez, Laura; Ingegnoli, Francesca; Leong, Amye; March, Lyn; Shea, Beverly; Strand, Vibeke; Tugwell, Peter; Westrich-Robertson, Tiffany; Zamora, Natalia V; Christensen, Robin; Suarez-Almazor, Maria E.

In: Journal of Rheumatology, Vol. 46, No. 9, 09.2019, p. 1164-1167.

Research output: Contribution to journalJournal articleResearchpeer-review

TY - JOUR

T1 - Core Outcome Sets Specifically for Longterm Observational Studies

T2 - OMERACT Special Interest Group Update in Rheumatoid Arthritis

AU - Lopez-Olivo, Maria A

AU - Negrón, José B

AU - Zogala, Richard J

AU - Carmona, Loreto

AU - Criner, Karla

AU - Goel, Niti

AU - Gonzalez-Lopez, Laura

AU - Ingegnoli, Francesca

AU - Leong, Amye

AU - March, Lyn

AU - Shea, Beverly

AU - Strand, Vibeke

AU - Tugwell, Peter

AU - Westrich-Robertson, Tiffany

AU - Zamora, Natalia V

AU - Christensen, Robin

AU - Suarez-Almazor, Maria E

PY - 2019/9

Y1 - 2019/9

N2 - OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.METHODS: Preliminary data and proposed next steps were outlined and discussed by participants.RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.

AB - OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.METHODS: Preliminary data and proposed next steps were outlined and discussed by participants.RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.

U2 - 10.3899/jrheum.181076

DO - 10.3899/jrheum.181076

M3 - Journal article

C2 - 30824644

VL - 46

SP - 1164

EP - 1167

JO - Journal of Rheumatology

JF - Journal of Rheumatology

SN - 0315-162X

IS - 9

ER -