Combined rehabilitation and palliative care interventions for patients with life-threatening diseases – PREGOAL. A scoping review of intervention programme goals

Henriette Søby Gärtner, Jahan Shabnam, Maria Aagesen, Vibeke Graven, Heidi Bergenholtz, Kristoffer Marså, Mai-Britt Guldin, Ane Vind, Jette Thuesen*

*Corresponding author for this work

Research output: Contribution to journalJournal articleResearchpeer-review

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Abstract

Purpose
WHO recommends integrating rehabilitation into palliative care when providing services for people with life-threatening conditions. Recently, there has been increasing interest in exploring how rehabilitation and palliative care approaches could be combined. The aim of this study was to map and discuss the goals of intervention programmes that combine rehabilitation and palliative care.

Methods
A scoping review was performed. The electronic databases MEDLINE, EMBASE, and CINAHL were searched for papers published between January 2014 and September 2022. Papers were considered eligible if the participants in question had a life-threatening disease and if interventions included both rehabilitation and palliative care. All study types were included.

Results
Ten papers describing five interventions were included. Qualitative goals were narratively described, and quantitative goals were analysed according to the International Classification of Functioning, Disability and Health, and the Total Pain framework. Findings showed an overall focus on functioning and quality of life. Further analysis indicated an emphasis on physical and psychological dimensions. Social participation, and the social and spiritual dimensions were rarely evaluated.

Conclusion
This review indicates that goals relative to social participation, the social and spiritual dimensions, and the patient’s own goals may well be overlooked as points of orientation for interventions.
Original languageEnglish
JournalDisability and Rehabilitation
Pages (from-to)1-11
Number of pages11
ISSN0963-8288
DOIs
Publication statusE-pub ahead of print - 15. Aug 2023

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