Between hope and hopelessness: COPD patients' and their family members' experiences of interacting with healthcare providers - a qualitative longitudinal study

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Abstract

BACKGROUND: Patient-family-healthcare provider interaction seems important for patients with chronic obstructive pulmonary disease (COPD) and their family members' self-management practices. Because the need for support might be enhanced after a hospitalisation, it might be beneficial to explore this interaction further in follow-up health care.

AIM: To explore the meaning of patients' and their family members' experiences of interacting with healthcare providers to their daily self-management over time.

METHODS: Participant observations and in-depth interviews were conducted repeatedly with 10 patients and seven family members during follow-up visits at hospital and at the participants' homes between 2014 and 2016. A phenomenological-hermeneutical approach was used to interpret the data.

RESULTS: 'Between hope and hopelessness' involved frustrations, concerns and doubts, all of which could relate to the interaction with healthcare providers. 'Seeking support from healthcare services', 'navigating between healthcare providers' and 'collaborating with healthcare providers at home' could entail opportunities to strengthen self-management and hope; however, it could also entail reduced faith in getting the right help and hopelessness.

CONCLUSION: During a period of transition after hospitalisation, available and well-coordinated healthcare services, and alliances with healthcare professionals are crucial to COPD patients and their family members in terms of their self-management, hope and well-being.

Original languageEnglish
JournalScandinavian Journal of Caring Sciences
Volume32
Issue number3
Pages (from-to)1197-1206
ISSN0283-9318
DOIs
Publication statusPublished - Sep 2018

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Health Personnel
Chronic Obstructive Pulmonary Disease
Longitudinal Studies
Delivery of Health Care
Frustration
Interviews

Keywords

  • Chronic obstructive pulmonary disease (COPD)
  • outpatient care
  • Qualitative Research
  • Self-management
  • Multimorbidity
  • patient–family–healthcare provider interactions
  • participant observations
  • hope and hopelessness
  • self-management
  • follow-up upon discharge
  • COPD
  • interviews
  • Professional-Patient Relations
  • Humans
  • Middle Aged
  • Family/psychology
  • Male
  • Health Personnel/psychology
  • Aged, 80 and over
  • Adult
  • Female
  • Hermeneutics
  • Pulmonary Disease, Chronic Obstructive/psychology
  • Emotions
  • Aged
  • Longitudinal Studies
  • Hope
  • Patients/psychology

Cite this

@article{a6d15d7fb10f49aaadcc8c9e01794757,
title = "Between hope and hopelessness: COPD patients' and their family members' experiences of interacting with healthcare providers - a qualitative longitudinal study",
abstract = "BACKGROUND: Patient-family-healthcare provider interaction seems important for patients with chronic obstructive pulmonary disease (COPD) and their family members' self-management practices. Because the need for support might be enhanced after a hospitalisation, it might be beneficial to explore this interaction further in follow-up health care.AIM: To explore the meaning of patients' and their family members' experiences of interacting with healthcare providers to their daily self-management over time.METHODS: Participant observations and in-depth interviews were conducted repeatedly with 10 patients and seven family members during follow-up visits at hospital and at the participants' homes between 2014 and 2016. A phenomenological-hermeneutical approach was used to interpret the data.RESULTS: 'Between hope and hopelessness' involved frustrations, concerns and doubts, all of which could relate to the interaction with healthcare providers. 'Seeking support from healthcare services', 'navigating between healthcare providers' and 'collaborating with healthcare providers at home' could entail opportunities to strengthen self-management and hope; however, it could also entail reduced faith in getting the right help and hopelessness.CONCLUSION: During a period of transition after hospitalisation, available and well-coordinated healthcare services, and alliances with healthcare professionals are crucial to COPD patients and their family members in terms of their self-management, hope and well-being.",
keywords = "Chronic obstructive pulmonary disease (COPD), outpatient care, Qualitative Research, Self-management, Multimorbidity, patient–family–healthcare provider interactions, participant observations, hope and hopelessness, self-management, follow-up upon discharge, COPD, interviews, Professional-Patient Relations, Humans, Middle Aged, Family/psychology, Male, Health Personnel/psychology, Aged, 80 and over, Adult, Female, Hermeneutics, Pulmonary Disease, Chronic Obstructive/psychology, Emotions, Aged, Longitudinal Studies, Hope, Patients/psychology",
author = "Andersen, {Ingrid Charlotte} and Thomsen, {Thora Grothe} and Poul Bruun and Uffe B{\o}dtger and Lise Hounsgaard",
note = "{\circledC} 2018 Nordic College of Caring Science.",
year = "2018",
month = "9",
doi = "10.1111/scs.12565",
language = "English",
volume = "32",
pages = "1197--1206",
journal = "Scandinavian Journal of Caring Sciences",
issn = "0283-9318",
publisher = "Wiley-Blackwell",
number = "3",

}

TY - JOUR

T1 - Between hope and hopelessness

T2 - COPD patients' and their family members' experiences of interacting with healthcare providers - a qualitative longitudinal study

AU - Andersen, Ingrid Charlotte

AU - Thomsen, Thora Grothe

AU - Bruun, Poul

AU - Bødtger, Uffe

AU - Hounsgaard, Lise

N1 - © 2018 Nordic College of Caring Science.

PY - 2018/9

Y1 - 2018/9

N2 - BACKGROUND: Patient-family-healthcare provider interaction seems important for patients with chronic obstructive pulmonary disease (COPD) and their family members' self-management practices. Because the need for support might be enhanced after a hospitalisation, it might be beneficial to explore this interaction further in follow-up health care.AIM: To explore the meaning of patients' and their family members' experiences of interacting with healthcare providers to their daily self-management over time.METHODS: Participant observations and in-depth interviews were conducted repeatedly with 10 patients and seven family members during follow-up visits at hospital and at the participants' homes between 2014 and 2016. A phenomenological-hermeneutical approach was used to interpret the data.RESULTS: 'Between hope and hopelessness' involved frustrations, concerns and doubts, all of which could relate to the interaction with healthcare providers. 'Seeking support from healthcare services', 'navigating between healthcare providers' and 'collaborating with healthcare providers at home' could entail opportunities to strengthen self-management and hope; however, it could also entail reduced faith in getting the right help and hopelessness.CONCLUSION: During a period of transition after hospitalisation, available and well-coordinated healthcare services, and alliances with healthcare professionals are crucial to COPD patients and their family members in terms of their self-management, hope and well-being.

AB - BACKGROUND: Patient-family-healthcare provider interaction seems important for patients with chronic obstructive pulmonary disease (COPD) and their family members' self-management practices. Because the need for support might be enhanced after a hospitalisation, it might be beneficial to explore this interaction further in follow-up health care.AIM: To explore the meaning of patients' and their family members' experiences of interacting with healthcare providers to their daily self-management over time.METHODS: Participant observations and in-depth interviews were conducted repeatedly with 10 patients and seven family members during follow-up visits at hospital and at the participants' homes between 2014 and 2016. A phenomenological-hermeneutical approach was used to interpret the data.RESULTS: 'Between hope and hopelessness' involved frustrations, concerns and doubts, all of which could relate to the interaction with healthcare providers. 'Seeking support from healthcare services', 'navigating between healthcare providers' and 'collaborating with healthcare providers at home' could entail opportunities to strengthen self-management and hope; however, it could also entail reduced faith in getting the right help and hopelessness.CONCLUSION: During a period of transition after hospitalisation, available and well-coordinated healthcare services, and alliances with healthcare professionals are crucial to COPD patients and their family members in terms of their self-management, hope and well-being.

KW - Chronic obstructive pulmonary disease (COPD)

KW - outpatient care

KW - Qualitative Research

KW - Self-management

KW - Multimorbidity

KW - patient–family–healthcare provider interactions

KW - participant observations

KW - hope and hopelessness

KW - self-management

KW - follow-up upon discharge

KW - COPD

KW - interviews

KW - Professional-Patient Relations

KW - Humans

KW - Middle Aged

KW - Family/psychology

KW - Male

KW - Health Personnel/psychology

KW - Aged, 80 and over

KW - Adult

KW - Female

KW - Hermeneutics

KW - Pulmonary Disease, Chronic Obstructive/psychology

KW - Emotions

KW - Aged

KW - Longitudinal Studies

KW - Hope

KW - Patients/psychology

U2 - 10.1111/scs.12565

DO - 10.1111/scs.12565

M3 - Journal article

C2 - 29446474

VL - 32

SP - 1197

EP - 1206

JO - Scandinavian Journal of Caring Sciences

JF - Scandinavian Journal of Caring Sciences

SN - 0283-9318

IS - 3

ER -