Acute hospital care experiences of patients with Alzheimer’s disease

Research output: Contribution to conference without publisher/journalConference abstract for conferenceResearchpeer-review

Abstract

Patients with Alzheimer’s as a co-morbidity find hospital stays challenging, because the focus is primarily on the somatic cause for the admission. This results in poorer holistic care, compared to patients without dementia, and an increased cost for the healthcare sector and, society as a whole.
This study conducted participant observation research strategies to follow patient journeys with Alzheimer’s disease admitted to orthopaedic wards, to learn about their experiences as patients. Longitudinal data were gathered by following one patient at a time, in both day and evening shifts, commencing at patient admission and concluding at time of discharge. 257 hours was spend observing, covering 37 shifts and involving three patients. The mean observation time, for the full days the patients were in hospital, was 14 hours and 36 minutes. This to ensure unique data on the patient’s admission experiences.
The data were interpreted from a phenomenological-hermeneutic perspective, inspired by Ricoeur’s interpretation theory, and incorporates Person-Centred Care and Interactional Nursing Practise Theory, in the analysis.
The study revealed a communication style among nurses who failed to take into account the comprehensive needs of patients with dementia, in terms of timely information exchange and clinical relevance. Patients expressed the desire to be more fully engaged in the care decision-making, together with indicating their appreciation of the work of the health professionals who cared for them. The data revealed that the process of getting to know the patient at the beginning of every shift left little room to alleviate patients’ experienced distress, caused by being in hospital. This resulted in patients who were less involved in the caring situation, or, if a patient took the initiative to act, intentions ended up being misinterpreted as disruptive behaviour.
The findings have relevance for staff and ward management who are interested in becoming a dementia-friendly hospital.
Original languageEnglish
Publication date25. Oct 2019
Publication statusPublished - 25. Oct 2019
Event29th Alzheimer Europe Conference - The Hague, Netherlands
Duration: 23. Oct 201925. Oct 2019

Conference

Conference29th Alzheimer Europe Conference
CountryNetherlands
CityThe Hague
Period23/10/201925/10/2019

Cite this

Jensen, A. M., Pedersen, B., Wilson, R., Olsen, R. B., & Hounsgaard, L. (2019). Acute hospital care experiences of patients with Alzheimer’s disease. Abstract from 29th Alzheimer Europe Conference, The Hague, Netherlands.
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abstract = "Patients with Alzheimer’s as a co-morbidity find hospital stays challenging, because the focus is primarily on the somatic cause for the admission. This results in poorer holistic care, compared to patients without dementia, and an increased cost for the healthcare sector and, society as a whole.This study conducted participant observation research strategies to follow patient journeys with Alzheimer’s disease admitted to orthopaedic wards, to learn about their experiences as patients. Longitudinal data were gathered by following one patient at a time, in both day and evening shifts, commencing at patient admission and concluding at time of discharge. 257 hours was spend observing, covering 37 shifts and involving three patients. The mean observation time, for the full days the patients were in hospital, was 14 hours and 36 minutes. This to ensure unique data on the patient’s admission experiences.The data were interpreted from a phenomenological-hermeneutic perspective, inspired by Ricoeur’s interpretation theory, and incorporates Person-Centred Care and Interactional Nursing Practise Theory, in the analysis.The study revealed a communication style among nurses who failed to take into account the comprehensive needs of patients with dementia, in terms of timely information exchange and clinical relevance. Patients expressed the desire to be more fully engaged in the care decision-making, together with indicating their appreciation of the work of the health professionals who cared for them. The data revealed that the process of getting to know the patient at the beginning of every shift left little room to alleviate patients’ experienced distress, caused by being in hospital. This resulted in patients who were less involved in the caring situation, or, if a patient took the initiative to act, intentions ended up being misinterpreted as disruptive behaviour.The findings have relevance for staff and ward management who are interested in becoming a dementia-friendly hospital.",
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Jensen, AM, Pedersen, B, Wilson, R, Olsen, RB & Hounsgaard, L 2019, 'Acute hospital care experiences of patients with Alzheimer’s disease', 29th Alzheimer Europe Conference, The Hague, Netherlands, 23/10/2019 - 25/10/2019.

Acute hospital care experiences of patients with Alzheimer’s disease. / Jensen, Anders Møller; Pedersen, Birthe; Wilson, Rhonda; Olsen, Rolf Bang; Hounsgaard, Lise.

2019. Abstract from 29th Alzheimer Europe Conference, The Hague, Netherlands.

Research output: Contribution to conference without publisher/journalConference abstract for conferenceResearchpeer-review

TY - ABST

T1 - Acute hospital care experiences of patients with Alzheimer’s disease

AU - Jensen, Anders Møller

AU - Pedersen, Birthe

AU - Wilson, Rhonda

AU - Olsen, Rolf Bang

AU - Hounsgaard, Lise

PY - 2019/10/25

Y1 - 2019/10/25

N2 - Patients with Alzheimer’s as a co-morbidity find hospital stays challenging, because the focus is primarily on the somatic cause for the admission. This results in poorer holistic care, compared to patients without dementia, and an increased cost for the healthcare sector and, society as a whole.This study conducted participant observation research strategies to follow patient journeys with Alzheimer’s disease admitted to orthopaedic wards, to learn about their experiences as patients. Longitudinal data were gathered by following one patient at a time, in both day and evening shifts, commencing at patient admission and concluding at time of discharge. 257 hours was spend observing, covering 37 shifts and involving three patients. The mean observation time, for the full days the patients were in hospital, was 14 hours and 36 minutes. This to ensure unique data on the patient’s admission experiences.The data were interpreted from a phenomenological-hermeneutic perspective, inspired by Ricoeur’s interpretation theory, and incorporates Person-Centred Care and Interactional Nursing Practise Theory, in the analysis.The study revealed a communication style among nurses who failed to take into account the comprehensive needs of patients with dementia, in terms of timely information exchange and clinical relevance. Patients expressed the desire to be more fully engaged in the care decision-making, together with indicating their appreciation of the work of the health professionals who cared for them. The data revealed that the process of getting to know the patient at the beginning of every shift left little room to alleviate patients’ experienced distress, caused by being in hospital. This resulted in patients who were less involved in the caring situation, or, if a patient took the initiative to act, intentions ended up being misinterpreted as disruptive behaviour.The findings have relevance for staff and ward management who are interested in becoming a dementia-friendly hospital.

AB - Patients with Alzheimer’s as a co-morbidity find hospital stays challenging, because the focus is primarily on the somatic cause for the admission. This results in poorer holistic care, compared to patients without dementia, and an increased cost for the healthcare sector and, society as a whole.This study conducted participant observation research strategies to follow patient journeys with Alzheimer’s disease admitted to orthopaedic wards, to learn about their experiences as patients. Longitudinal data were gathered by following one patient at a time, in both day and evening shifts, commencing at patient admission and concluding at time of discharge. 257 hours was spend observing, covering 37 shifts and involving three patients. The mean observation time, for the full days the patients were in hospital, was 14 hours and 36 minutes. This to ensure unique data on the patient’s admission experiences.The data were interpreted from a phenomenological-hermeneutic perspective, inspired by Ricoeur’s interpretation theory, and incorporates Person-Centred Care and Interactional Nursing Practise Theory, in the analysis.The study revealed a communication style among nurses who failed to take into account the comprehensive needs of patients with dementia, in terms of timely information exchange and clinical relevance. Patients expressed the desire to be more fully engaged in the care decision-making, together with indicating their appreciation of the work of the health professionals who cared for them. The data revealed that the process of getting to know the patient at the beginning of every shift left little room to alleviate patients’ experienced distress, caused by being in hospital. This resulted in patients who were less involved in the caring situation, or, if a patient took the initiative to act, intentions ended up being misinterpreted as disruptive behaviour.The findings have relevance for staff and ward management who are interested in becoming a dementia-friendly hospital.

M3 - Conference abstract for conference

ER -

Jensen AM, Pedersen B, Wilson R, Olsen RB, Hounsgaard L. Acute hospital care experiences of patients with Alzheimer’s disease. 2019. Abstract from 29th Alzheimer Europe Conference, The Hague, Netherlands.