Abstract
disease, there is a need for more in-depth knowledge about what is essential to these patients and how
they perceive their self-image while participating in rehabilitation. Therefore, this study aims to explore
patients’ experiences and perception of self-image during pulmonary rehabilitation.
Methods: Twenty-one patients were followed by participant observations during standard rehabilitation
complicity supplemented with final individual interviews. Phenomenological-hermeneutic analysis and
interpretation were applied.
Results: Through a rewarding peer fellowship, patients became engaged in rehabilitation and improved
their capacity to embrace and manage their illness. Through a humorous interplay, encouragement to
live with the life-threating disease developed. While understanding themselves in a wider perspective,
patients enhanced enablement to shape life according to personal satisfaction. Although participating in
the group-based programme was mostly invigorating, it was, however, sometimes perceived as a stressful
overload. More individualized support from healthcare professionals was warrented.
Conclusions: Group-based pulmonary rehabilitation can support chronic pulmonary obstructive disease
patients towards significant change in self-image and health behaviour, leading to improved illness management.
Enlarged opportunities to benefit from peer-fellowship and enhanced focus on what is essential
to the participants might expand the rehabilitation yields.
| Original language | English |
|---|---|
| Journal | Disability and Rehabilitation |
| Number of pages | 10 |
| ISSN | 0963-8288 |
| DOIs | |
| Publication status | E-pub ahead of print - 14. Feb 2019 |
Keywords
- Chronic obstructive pulmonary disease (COPD)
- pulmonary rehabilitation
- Multimorbidity
- outpatient care
- peer-fellowship
- humour
- health behaviour
- participant observations
- Pulmonary rehabilitation
- interviews
Cite this
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Accommodating to a troubled life – chronic obstructive pulmonary disease patients’ experiences and perceptions of self-image during the course of rehabilitation. / Simonÿ, Charlotte; Andersen, Ingrid Charlotte ; Bødtger, Uffe; Birkelund, Regner.
In: Disability and Rehabilitation, 14.02.2019.Research output: Contribution to journal › Journal article › Research › peer-review
TY - JOUR
T1 - Accommodating to a troubled life – chronic obstructive pulmonary disease patients’ experiences and perceptions of self-image during the course of rehabilitation
AU - Simonÿ, Charlotte
AU - Andersen, Ingrid Charlotte
AU - Bødtger, Uffe
AU - Birkelund, Regner
PY - 2019/2/14
Y1 - 2019/2/14
N2 - Background: To tailor future rehabilitation programmes for patients with chronic pulmonary obstructivedisease, there is a need for more in-depth knowledge about what is essential to these patients and howthey perceive their self-image while participating in rehabilitation. Therefore, this study aims to explorepatients’ experiences and perception of self-image during pulmonary rehabilitation.Methods: Twenty-one patients were followed by participant observations during standard rehabilitationcomplicity supplemented with final individual interviews. Phenomenological-hermeneutic analysis andinterpretation were applied.Results: Through a rewarding peer fellowship, patients became engaged in rehabilitation and improvedtheir capacity to embrace and manage their illness. Through a humorous interplay, encouragement tolive with the life-threating disease developed. While understanding themselves in a wider perspective,patients enhanced enablement to shape life according to personal satisfaction. Although participating inthe group-based programme was mostly invigorating, it was, however, sometimes perceived as a stressfuloverload. More individualized support from healthcare professionals was warrented.Conclusions: Group-based pulmonary rehabilitation can support chronic pulmonary obstructive diseasepatients towards significant change in self-image and health behaviour, leading to improved illness management.Enlarged opportunities to benefit from peer-fellowship and enhanced focus on what is essentialto the participants might expand the rehabilitation yields.
AB - Background: To tailor future rehabilitation programmes for patients with chronic pulmonary obstructivedisease, there is a need for more in-depth knowledge about what is essential to these patients and howthey perceive their self-image while participating in rehabilitation. Therefore, this study aims to explorepatients’ experiences and perception of self-image during pulmonary rehabilitation.Methods: Twenty-one patients were followed by participant observations during standard rehabilitationcomplicity supplemented with final individual interviews. Phenomenological-hermeneutic analysis andinterpretation were applied.Results: Through a rewarding peer fellowship, patients became engaged in rehabilitation and improvedtheir capacity to embrace and manage their illness. Through a humorous interplay, encouragement tolive with the life-threating disease developed. While understanding themselves in a wider perspective,patients enhanced enablement to shape life according to personal satisfaction. Although participating inthe group-based programme was mostly invigorating, it was, however, sometimes perceived as a stressfuloverload. More individualized support from healthcare professionals was warrented.Conclusions: Group-based pulmonary rehabilitation can support chronic pulmonary obstructive diseasepatients towards significant change in self-image and health behaviour, leading to improved illness management.Enlarged opportunities to benefit from peer-fellowship and enhanced focus on what is essentialto the participants might expand the rehabilitation yields.
KW - Chronic obstructive pulmonary disease (COPD)
KW - pulmonary rehabilitation
KW - Multimorbidity
KW - outpatient care
KW - peer-fellowship
KW - humour
KW - health behaviour
KW - participant observations
KW - Pulmonary rehabilitation
KW - interviews
U2 - 10.1080/09638288.2018.1563641
DO - 10.1080/09638288.2018.1563641
M3 - Journal article
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
SN - 0963-8288
ER -