A Difficult Diagnosis: A Qualitative Study of the Daily Lives of Young Men Diagnosed with Ankylosing Spondylitis

Research output: Contribution to journalJournal articleResearchpeer-review

Abstract

Objectives: The majority of patients with ankylosing spondylitis (AS) are young men, and there is limited knowledge about how these men live their everyday lives with the disease. The aim of the present study was to generate knowledge and an understanding of how this group of patients live from day to day, and how they meet the challenges they face in relation to their disease. Methods: The study was based on a qualitative research design and consisted of semi-structured interviews with men diagnosed with AS. The men were recruited from a rheumatological hospital in Denmark. The study's theoretical framework was grounded in critical psychology, and the analysis was based on Kvale and Brinkmann's meaning condensation. Results: The five men interviewed were 21–37 years old. At the time of the interview, the participants had been diagnosed with AS for an average of 2.6 years, with an average time from the onset of symptoms to diagnosis of 5.4 years. The analysis resulted in the following three themes: ‘Daily living and psychological reactions’, ‘A difficult diagnosis’ and ‘Working life and identity’. Conclusions: It took a long time to make the correct diagnosis, and the period before diagnosis was characterized by great uncertainty regarding the men's prospects. In addition, physical limitations, depression and stress had an inhibitory impact on the men's everyday lives. It was important for the men to stay in the work force and to be able to change their career direction, which was necessary for the men whose jobs involved hard physical work.

Original languageEnglish
JournalMusculoskeletal Care
Volume15
Issue number2
Pages (from-to)140-149
ISSN1478-2189
DOIs
Publication statusPublished - Jun 2017

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Interviews
Qualitative Research
Denmark
Uncertainty
Research Design
Theoretical Models
Depression
Direction compound

Keywords

  • Everyday life
  • ankylosing spondylitis
  • interview
  • masculinity
  • working life

Cite this

@article{9c4c2b87ef8a4bb6953ca9f23f6814d4,
title = "A Difficult Diagnosis: A Qualitative Study of the Daily Lives of Young Men Diagnosed with Ankylosing Spondylitis",
abstract = "Objectives: The majority of patients with ankylosing spondylitis (AS) are young men, and there is limited knowledge about how these men live their everyday lives with the disease. The aim of the present study was to generate knowledge and an understanding of how this group of patients live from day to day, and how they meet the challenges they face in relation to their disease. Methods: The study was based on a qualitative research design and consisted of semi-structured interviews with men diagnosed with AS. The men were recruited from a rheumatological hospital in Denmark. The study's theoretical framework was grounded in critical psychology, and the analysis was based on Kvale and Brinkmann's meaning condensation. Results: The five men interviewed were 21–37 years old. At the time of the interview, the participants had been diagnosed with AS for an average of 2.6 years, with an average time from the onset of symptoms to diagnosis of 5.4 years. The analysis resulted in the following three themes: ‘Daily living and psychological reactions’, ‘A difficult diagnosis’ and ‘Working life and identity’. Conclusions: It took a long time to make the correct diagnosis, and the period before diagnosis was characterized by great uncertainty regarding the men's prospects. In addition, physical limitations, depression and stress had an inhibitory impact on the men's everyday lives. It was important for the men to stay in the work force and to be able to change their career direction, which was necessary for the men whose jobs involved hard physical work.",
keywords = "Everyday life, ankylosing spondylitis, interview, masculinity, working life",
author = "Nina Primholdt and Jette Primdahl and Oliver Hendricks",
note = "Copyright {\circledC} 2016 John Wiley & Sons, Ltd.",
year = "2017",
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A Difficult Diagnosis : A Qualitative Study of the Daily Lives of Young Men Diagnosed with Ankylosing Spondylitis. / Primholdt, Nina; Primdahl, Jette; Hendricks, Oliver.

In: Musculoskeletal Care, Vol. 15, No. 2, 06.2017, p. 140-149.

Research output: Contribution to journalJournal articleResearchpeer-review

TY - JOUR

T1 - A Difficult Diagnosis

T2 - A Qualitative Study of the Daily Lives of Young Men Diagnosed with Ankylosing Spondylitis

AU - Primholdt, Nina

AU - Primdahl, Jette

AU - Hendricks, Oliver

N1 - Copyright © 2016 John Wiley & Sons, Ltd.

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N2 - Objectives: The majority of patients with ankylosing spondylitis (AS) are young men, and there is limited knowledge about how these men live their everyday lives with the disease. The aim of the present study was to generate knowledge and an understanding of how this group of patients live from day to day, and how they meet the challenges they face in relation to their disease. Methods: The study was based on a qualitative research design and consisted of semi-structured interviews with men diagnosed with AS. The men were recruited from a rheumatological hospital in Denmark. The study's theoretical framework was grounded in critical psychology, and the analysis was based on Kvale and Brinkmann's meaning condensation. Results: The five men interviewed were 21–37 years old. At the time of the interview, the participants had been diagnosed with AS for an average of 2.6 years, with an average time from the onset of symptoms to diagnosis of 5.4 years. The analysis resulted in the following three themes: ‘Daily living and psychological reactions’, ‘A difficult diagnosis’ and ‘Working life and identity’. Conclusions: It took a long time to make the correct diagnosis, and the period before diagnosis was characterized by great uncertainty regarding the men's prospects. In addition, physical limitations, depression and stress had an inhibitory impact on the men's everyday lives. It was important for the men to stay in the work force and to be able to change their career direction, which was necessary for the men whose jobs involved hard physical work.

AB - Objectives: The majority of patients with ankylosing spondylitis (AS) are young men, and there is limited knowledge about how these men live their everyday lives with the disease. The aim of the present study was to generate knowledge and an understanding of how this group of patients live from day to day, and how they meet the challenges they face in relation to their disease. Methods: The study was based on a qualitative research design and consisted of semi-structured interviews with men diagnosed with AS. The men were recruited from a rheumatological hospital in Denmark. The study's theoretical framework was grounded in critical psychology, and the analysis was based on Kvale and Brinkmann's meaning condensation. Results: The five men interviewed were 21–37 years old. At the time of the interview, the participants had been diagnosed with AS for an average of 2.6 years, with an average time from the onset of symptoms to diagnosis of 5.4 years. The analysis resulted in the following three themes: ‘Daily living and psychological reactions’, ‘A difficult diagnosis’ and ‘Working life and identity’. Conclusions: It took a long time to make the correct diagnosis, and the period before diagnosis was characterized by great uncertainty regarding the men's prospects. In addition, physical limitations, depression and stress had an inhibitory impact on the men's everyday lives. It was important for the men to stay in the work force and to be able to change their career direction, which was necessary for the men whose jobs involved hard physical work.

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