Time to End-of-Life of Patients Starting Specialised Palliative Care in Denmark: A Descriptive Register-Based Cohort Study

Camilla Jøhnk, Helene Holm Laigaard, Andreas Kristian Pedersen, Eithne Hayes Bauer*, Frans Brandt, Georg Bollig, Donna Lykke Wolff


Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

10 Downloads (Pure)


Increasing numbers of patients are being referred to specialised palliative care (SPC) which, in order to be beneficial, is recommended to last more than three months. This cohort study aimed to describe time to end-of-life after initiating SPC treatment and to explore potential regional variations. We used national register data from all Danish hospital SPC teams. We included patients who started SPC treatment from 2015–2018 to explore if time to end-of-life was longer than three months. Descriptive statistics were used to summarise the data and a generalised linear model was used to assess variations among the five Danish regions. A total of 27,724 patients were included, of whom 36.7% (95% CI 36.2–37.1%) had over three months to end-of-life. In the Capital Region of Denmark, 40.1% (95% CI 39.0–41.3%) had over three months to end-of-life versus 32.5% (95% CI 30.9–34.0%) in North Denmark Region. We conclude that most patients live for a shorter period of time than the recommended three months after initiating SPC treatment. This is neither optimal for patient care, nor the healthcare system. A geographical variation between regions was shown indicating different practices, patient groups or resources. These results warrant further investigation to promote optimal SPC treatment.

TidsskriftInternational Journal of Environmental Research and Public Health
Udgave nummer20
Antal sider11
StatusUdgivet - okt. 2022

Bibliografisk note

Funding Information:
The authors thank all hospices and palliative care teams/units in Denmark for delivering data to DPD, which is funded by the Danish Regions. We also wish to thank Caroline Moos, research advisor at University Hospital of Southern Denmark, Hospital Sønderjylland and Maiken Bang Hansen, epidemiologist at the Danish Palliative care Database for their contributions as scientific advisors to this article.


Dyk ned i forskningsemnerne om 'Time to End-of-Life of Patients Starting Specialised Palliative Care in Denmark: A Descriptive Register-Based Cohort Study'. Sammen danner de et unikt fingeraftryk.