The Impact of Hypoglycaemia on the Quality of Life of Family Members of Persons with Type 1 or Type 2 Diabetes

Mette Valdersdorf Jensen

doi:10.21996/5v07-3t82

The Impact of Hypoglycaemia on the Quality of Life of Family Members of Persons with Type 1 or Type 2 Diabetes

Mette Valdersdorf Jensen

Publikation: Afhandling › Ph.d.-afhandling

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Abstract

Hypoglykæmi (lavt blodsukker) er en almindeligt forekommende komplikation til insulinbehandling og glukosesænkende medicin. Episoder med hypoglykæmi medfører ikke kun forskellige fysiske
reaktioner, men kan ligeledes have en negativ psykologisk indvirkning på mennesker med diabetes og deres familiemedlemmer. Familiemedlemmer kan opleve frygt for og bekymringer i forbindelse med hypoglykæmi, men hypoglykæmis påvirkning på andre områder af familiemedlemmers liv, såsom arbejde, relationer og socialt liv, er endnu ikke fuldt forstået.

Denne afhandling undersøger, hvordan hypoglykæmi påvirker livskvaliteten for familiemedlemmer til mennesker med type 1 eller type 2 diabetes. Derudover fokuserer afhandlingen på at udforske familiemedlemmers behov og ønsker i relation til hypoglykæmi.

To systematiske reviews blev gennemført med fokus på at klarlægge den nuværende litteraturbase omhandlende hypoglykæmis indvirkning på familiemedlemmer. Et online, multinationalt, kvalitativt spørgeskema blev udviklet og gennemført, med et fokus på at undersøge hypoglykæmis indvirkning på familiemedlemmer, og deres relaterede behov og ønsker.

Afhandlingen fandt, at familiemedlemmer er alvorligt påvirket af hypoglykæmi på flere områder af deres liv, og at de desuden har specifikke behov og ønsker relateret til hertil. Fundene belyser at
hypoglykæmis påvirkning er en kompleks størrelse, og at familiemedlemmers behov bør adresseres med målrettede tilbud om støtte. Afhandlingen fandt desuden at redskaber, der bruges til at vurdere hypoglykæmis påvirkning af forældres liv, kun adresserer enkelte aspekter af livskvalitet. Desuden var der stor variation i målingen og definitionen af hypoglykæmi i studier, der involverede forældrebesvarelser af episoder med hypoglykæmi.

De kliniske implikationer og fremtidige perspektiver af disse fund vil blive diskuteret i denne afhandling.

Originalsprog	Engelsk
Bevilgende institution	Syddansk Universitet
Vejledere/rådgivere	Pouwer, Francois, Hovedvejleder Broadley, Melanie, Vejleder Speight, Jane, Vejleder
Dato for forsvar	4. mar. 2022
Udgiver	Syddansk Universitet. Det Sundhedsvidenskabelige Fakultet
DOI	https://doi.org/10.21996/5v07-3t82
Status	Udgivet - 3. feb. 2022

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10.21996/5v07-3t82

Open Access VersionForlagets udgivne version, 101 MB

2 Tidsskriftartikel

The Impact of Hypoglycaemia in Children and Adolescents with Type 1 Diabetes on Parental Quality of Life and Related Outcomes: A Systematic Review
Valdersdorf Jensen, M., Broadley, M., Speight, J., Chatwin, H., Scope, A., Cantrell, A., Heller, S., de Galan, B. E., Hendrieckx, C., Pouwer, F. & Hypo-RESOLVE consortium, maj 2022, I: Pediatric Diabetes. 23, 3, s. 390-405
Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › peer review

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The impact of hypoglycaemia on the quality of life of family members of adults with type 1 or type 2 diabetes - a qualitative systematic review
Jensen, M. V., Broadley, M., Speight, J., Scope, A., Preston, L., Heller, S., de Galan, B. E., Pouwer, F., Hendrieckx, C. & Hypo-RESOLVE consortium, okt. 2021, I: Diabetic Medicine. 38, 10, s. e14666 e14666.
Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › peer review

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The Impact of Hypoglycaemia on the Quality of Life of Family Members of Persons with Type 1 or Type 2 Diabetes
Jensen, M. V. (Ph.d.-studerende)
01/11/2018 → 01/11/2021
Projekter: Projekt › Ph.d-projekt

Citationsformater

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abstract = "Hypoglycaemia (low blood glucose) is a common and recurrent complication to insulin treatment and glucose lowering tablets. Episodes of hypoglycaemia can not only cause a variety of physical reactions but can also have a negative psychological impact on persons with diabetes and their family members. Family members can experience fear and worries about hypoglycaemia, yet the impact of hypoglycaemia on other areas of family members lives, such as work, relationships and social life, is not fully understood. Hypoglycaemia (low blood glucose) is a common and recurrent complication to insulin treatment andglucose lowering tablets. Episodes of hypoglycaemia can not only cause a variety of physicalreactions but can also have a negative psychological impact on persons with diabetes and their family members. Family members can experience fear and worries about hypoglycaemia, yet the impact of hypoglycaemia on other areas of family members lives, such as work, relationships and social life, is not fully understood. Two systematic reviews were conducted to map the current evidence base of the impact of hypoglycaemia on family members. An online, multi-country, qualitative survey was developed and conducted exploring the impact of hypoglycaemia on family members, and their related needs and wishes. The thesis found that family members are severely impacted by hypoglycaemia on multiple areas of their lives, and that they have specific needs and wishes related to their relatives{\textquoteright} hypoglycaemia. The findings highlight that the impact of hypoglycaemia is complex, and that family members{\textquoteright} needs should be addressed with targeted support offers. The thesis further found that measures used to assess the impact of hypoglycaemia on parent{\textquoteright}s life address only certain aspects of quality of life, and further that inconsistencies in measuring and defining hypoglycaemia in studies including parent report exist. The clinical implications and future perspectives of these findings will be discussed in the present thesis.",

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AB - Hypoglycaemia (low blood glucose) is a common and recurrent complication to insulin treatment and glucose lowering tablets. Episodes of hypoglycaemia can not only cause a variety of physical reactions but can also have a negative psychological impact on persons with diabetes and their family members. Family members can experience fear and worries about hypoglycaemia, yet the impact of hypoglycaemia on other areas of family members lives, such as work, relationships and social life, is not fully understood. Hypoglycaemia (low blood glucose) is a common and recurrent complication to insulin treatment andglucose lowering tablets. Episodes of hypoglycaemia can not only cause a variety of physicalreactions but can also have a negative psychological impact on persons with diabetes and their family members. Family members can experience fear and worries about hypoglycaemia, yet the impact of hypoglycaemia on other areas of family members lives, such as work, relationships and social life, is not fully understood. Two systematic reviews were conducted to map the current evidence base of the impact of hypoglycaemia on family members. An online, multi-country, qualitative survey was developed and conducted exploring the impact of hypoglycaemia on family members, and their related needs and wishes. The thesis found that family members are severely impacted by hypoglycaemia on multiple areas of their lives, and that they have specific needs and wishes related to their relatives’ hypoglycaemia. The findings highlight that the impact of hypoglycaemia is complex, and that family members’ needs should be addressed with targeted support offers. The thesis further found that measures used to assess the impact of hypoglycaemia on parent’s life address only certain aspects of quality of life, and further that inconsistencies in measuring and defining hypoglycaemia in studies including parent report exist. The clinical implications and future perspectives of these findings will be discussed in the present thesis.

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The Impact of Hypoglycaemia on the Quality of Life of Family Members of Persons with Type 1 or Type 2 Diabetes

Abstract

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Relaterede publikationer

The Impact of Hypoglycaemia in Children and Adolescents with Type 1 Diabetes on Parental Quality of Life and Related Outcomes: A Systematic Review

The impact of hypoglycaemia on the quality of life of family members of adults with type 1 or type 2 diabetes - a qualitative systematic review

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The Impact of Hypoglycaemia on the Quality of Life of Family Members of Persons with Type 1 or Type 2 Diabetes

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