Shared decision-making and patient and public involvement: Can they become standard in Switzerland?

Kevin Selby*, Marie Anne Durand, Christian von Plessen, Reto Auer, Nikola Biller-Andorno, Tanja Krones, Thomas Agoritsas, Jacques Cornuz

*Kontaktforfatter

Publikation: Bidrag til tidsskriftKonferenceartikelForskningpeer review

Abstract

The Swiss healthcare system is highly decentralized, making implementation of shared decision making (SDM) and patient and public involvement (PPI) quite slow; nonetheless, change is happening. SDM is now a core communication competency for medical school graduates, as reflected by a dedicated station on the federal exam, and is endorsed by several national societies. Multiple local initiatives are contributing to international best practices, local implementation, and increased capacity. PPI is also gaining momentum, most notably in research, with the development of a national platform for clinical research and inclusion of patients in the evaluation committees for funding. The challenge now is going from example projects by motivated early adopters in academia to making SDM and PPI standard practice.

OriginalsprogEngelsk
TidsskriftZeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen
Vol/bind171
Sider (fra-til)135-138
ISSN1865-9217
DOI
StatusUdgivet - jun. 2022
BegivenhedInternational Shared Decision Making Conference 2022 - Comwell Kolding, Kolding, Danmark
Varighed: 19. jun. 202222. jun. 2022
https://www.isdm2022.com/

Konference

KonferenceInternational Shared Decision Making Conference 2022
LokationComwell Kolding
Land/OmrådeDanmark
ByKolding
Periode19/06/202222/06/2022
Internetadresse

Bibliografisk note

Funding Information:
In Zürich, a randomized trial was performed using serious illness, goals of care and SDM communication including one DA video and five booklet DAs (Resuscitation, Dyspnoea, Dialysis withdrawal, Nutrition and fluid and Last place of care) for advance care planning with competent severely ill hospitalized adults. The intervention resulted in fewer patients wanting to be resuscitated or being undecided, a significant reduction of decisional conflict in patients and their loved ones with regard to emergency decisions and significantly more patients dying at their preferred place of care [29] . The development of a Patient Decision aid focusing on both advance care planning and shared decision-making for patients with severe aortic stenosis, funded by the Swiss Academy of Medical Science, is under way. The recently created Swiss pole of the Database of Individual Patients’ Expericences (DIPEx) collaboration collects narrative interview studies of people’s experiences with health issues as an information resource for others (www.dipex.ch). The interdisciplinary “Mind the Patient” Lab was founded in 2020. It includes clinicians from the University Hospital Zurich, medical ethicists from the University of Zurich, patient representatives, computer scientists from the Swiss Federal Institute of Technology in Zurich, and designers from the Zurich University of the Arts. Its work centres on the development of digital tools for SDM.

Funding Information:
Several projects and initiatives at the local and national levels are highlighted in Table 1 . In Bern, the focus at the Institute of Primary Health Care has been on the development, test, implementation and dissemination of decision aids for colorectal cancer screening, chronic insomnia treatment [18] , and antibiotic prescription in primary health care [19] . The Swiss National Science Foundation funded a project promoting shared decision making for the choice of faecal immunochemical testing and colonoscopy in colorectal cancer screening in primary care [20] . This project enabled the participatory development of outcome measures with and for primary care physicians to measure their practices, the set-up of a citizen advisory group who advised and commented on the conduct of the research activities [21] , and the conduct of two randomized controlled trial testing the effects of multilevel interventions promoting SDM in colorectal cancer screening decisions [22] .

Emneord

  • Patient and public involvement in research
  • Shared decision-making
  • Switzerland

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