Quality of Life Research Center, Department of Haematology, Odense University Hospital

Publikation: Konferencebidrag uden forlag/tidsskriftKonferenceabstrakt til konferenceFormidling

Resumé

Introduction:
Improved treatment has in some cancer types led to transformation of life-threatening illness into chronic disease. Thus, the years lived with cancer have increased, which, in turn, highlights the need for focus on health related Quality of Life (HR-QoL) issues. Therefore, a Quality of Life Research Center was established in 2017 at the Department of Haematology, Odense University Hospital (QoL Research OUH). The aim is to conduct independent QoL research projects and to assist clinical trials in researching factors affecting HR-QoL.

Materials and methods:
QoL Research OUH offers 1) development of subprotocols (methods, statistics and interpretation of results) for collection of QoL data in clinical trials and 2) management of quantitative (patient reported outcomes (PROs), surveys) and/or qualitative (interviews, participant observations) data collection methods. For each study, a cooperation contract is drawn up, specifying the tasks and obligations of QoL Research OUH, including agreements on financing, affiliation, publishing. QoL Research OUH is a non-profit organization. See more at http://en.ouh.dk/research/quality-of-life-research-center-ouh.

Results:
QoL Research OUH currently manages QoL data collection in five Nordic phase II hematological multi-center clinical trials besides affiliation to the world´s largest nation-wide population-based cohort study on QoL in Danish multiple myeloma patients. Collaboration in three more multicenter clinical trials is in the pipeline.

Conclusions and perspectives
To deliver credible QoL data thorough planning is needed. Thus, a cross-disciplinary and interdisciplinary QoL research center has been established. QoL Research OUH contributes to systematic and evidence-based collection of QoL data through quantitative and qualitative methods. The vision is to collaborate on QoL data within National and International cancer study groups.
OriginalsprogEngelsk
Publikationsdato30. aug. 2018
StatusUdgivet - 30. aug. 2018

Fingeraftryk

Hematology
Quality of Life
Research
Clinical Trials
Nonprofit Organizations
Neoplasms
Multicenter Studies
Cohort Studies
Interviews

Citer dette

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title = "Quality of Life Research Center, Department of Haematology, Odense University Hospital",
abstract = "Introduction:Improved treatment has in some cancer types led to transformation of life-threatening illness into chronic disease. Thus, the years lived with cancer have increased, which, in turn, highlights the need for focus on health related Quality of Life (HR-QoL) issues. Therefore, a Quality of Life Research Center was established in 2017 at the Department of Haematology, Odense University Hospital (QoL Research OUH). The aim is to conduct independent QoL research projects and to assist clinical trials in researching factors affecting HR-QoL. Materials and methods:QoL Research OUH offers 1) development of subprotocols (methods, statistics and interpretation of results) for collection of QoL data in clinical trials and 2) management of quantitative (patient reported outcomes (PROs), surveys) and/or qualitative (interviews, participant observations) data collection methods. For each study, a cooperation contract is drawn up, specifying the tasks and obligations of QoL Research OUH, including agreements on financing, affiliation, publishing. QoL Research OUH is a non-profit organization. See more at http://en.ouh.dk/research/quality-of-life-research-center-ouh. Results:QoL Research OUH currently manages QoL data collection in five Nordic phase II hematological multi-center clinical trials besides affiliation to the world´s largest nation-wide population-based cohort study on QoL in Danish multiple myeloma patients. Collaboration in three more multicenter clinical trials is in the pipeline.Conclusions and perspectives To deliver credible QoL data thorough planning is needed. Thus, a cross-disciplinary and interdisciplinary QoL research center has been established. QoL Research OUH contributes to systematic and evidence-based collection of QoL data through quantitative and qualitative methods. The vision is to collaborate on QoL data within National and International cancer study groups.",
author = "Henrik Eshoj and {Kongsgaard Nielsen}, Lene and Henrik Frederiksen and Hanne Vestergaard and Jepsen, {Lene {\O}stergaard} and Danbj{\o}rg, {Dorthe Boe} and Niels Abildgaard",
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Quality of Life Research Center, Department of Haematology, Odense University Hospital. / Eshoj, Henrik; Kongsgaard Nielsen, Lene; Frederiksen, Henrik; Vestergaard, Hanne; Jepsen, Lene Østergaard ; Danbjørg, Dorthe Boe ; Abildgaard , Niels.

2018.

Publikation: Konferencebidrag uden forlag/tidsskriftKonferenceabstrakt til konferenceFormidling

TY - ABST

T1 - Quality of Life Research Center, Department of Haematology, Odense University Hospital

AU - Eshoj, Henrik

AU - Kongsgaard Nielsen, Lene

AU - Frederiksen, Henrik

AU - Vestergaard, Hanne

AU - Jepsen, Lene Østergaard

AU - Danbjørg, Dorthe Boe

AU - Abildgaard , Niels

PY - 2018/8/30

Y1 - 2018/8/30

N2 - Introduction:Improved treatment has in some cancer types led to transformation of life-threatening illness into chronic disease. Thus, the years lived with cancer have increased, which, in turn, highlights the need for focus on health related Quality of Life (HR-QoL) issues. Therefore, a Quality of Life Research Center was established in 2017 at the Department of Haematology, Odense University Hospital (QoL Research OUH). The aim is to conduct independent QoL research projects and to assist clinical trials in researching factors affecting HR-QoL. Materials and methods:QoL Research OUH offers 1) development of subprotocols (methods, statistics and interpretation of results) for collection of QoL data in clinical trials and 2) management of quantitative (patient reported outcomes (PROs), surveys) and/or qualitative (interviews, participant observations) data collection methods. For each study, a cooperation contract is drawn up, specifying the tasks and obligations of QoL Research OUH, including agreements on financing, affiliation, publishing. QoL Research OUH is a non-profit organization. See more at http://en.ouh.dk/research/quality-of-life-research-center-ouh. Results:QoL Research OUH currently manages QoL data collection in five Nordic phase II hematological multi-center clinical trials besides affiliation to the world´s largest nation-wide population-based cohort study on QoL in Danish multiple myeloma patients. Collaboration in three more multicenter clinical trials is in the pipeline.Conclusions and perspectives To deliver credible QoL data thorough planning is needed. Thus, a cross-disciplinary and interdisciplinary QoL research center has been established. QoL Research OUH contributes to systematic and evidence-based collection of QoL data through quantitative and qualitative methods. The vision is to collaborate on QoL data within National and International cancer study groups.

AB - Introduction:Improved treatment has in some cancer types led to transformation of life-threatening illness into chronic disease. Thus, the years lived with cancer have increased, which, in turn, highlights the need for focus on health related Quality of Life (HR-QoL) issues. Therefore, a Quality of Life Research Center was established in 2017 at the Department of Haematology, Odense University Hospital (QoL Research OUH). The aim is to conduct independent QoL research projects and to assist clinical trials in researching factors affecting HR-QoL. Materials and methods:QoL Research OUH offers 1) development of subprotocols (methods, statistics and interpretation of results) for collection of QoL data in clinical trials and 2) management of quantitative (patient reported outcomes (PROs), surveys) and/or qualitative (interviews, participant observations) data collection methods. For each study, a cooperation contract is drawn up, specifying the tasks and obligations of QoL Research OUH, including agreements on financing, affiliation, publishing. QoL Research OUH is a non-profit organization. See more at http://en.ouh.dk/research/quality-of-life-research-center-ouh. Results:QoL Research OUH currently manages QoL data collection in five Nordic phase II hematological multi-center clinical trials besides affiliation to the world´s largest nation-wide population-based cohort study on QoL in Danish multiple myeloma patients. Collaboration in three more multicenter clinical trials is in the pipeline.Conclusions and perspectives To deliver credible QoL data thorough planning is needed. Thus, a cross-disciplinary and interdisciplinary QoL research center has been established. QoL Research OUH contributes to systematic and evidence-based collection of QoL data through quantitative and qualitative methods. The vision is to collaborate on QoL data within National and International cancer study groups.

M3 - Conference abstract for conference

ER -