Process, content, and experiences of delivering the Carer Support Needs Assessment Tool Intervention (CSNAT-I) in the Danish specialised palliative care setting

Line Lund*, Lone Ross, Morten Aagaard Petersen, Elizabeth Rosted, Georg Bollig, Gitte Irene Juhl, Hanne Farholt, Helen Winther, Louise Laursen, Elin Gundelund Blaaberg, Signe Weensgaard, Mai Britt Guldin, Gail Ewing, Gunn Grande, Mogens Groenvold

*Kontaktforfatter for dette arbejde

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Abstrakt

Purpose: The Carer Support Needs Assessment Tool Intervention (CSNAT-I) has shown positive effects in the Danish specialised palliative care (SPC) setting. Here, we explore the process, content, and experiences of delivering the CSNAT-I. Methods: Data were collected during a stepped wedge cluster randomised controlled trial investigating the impact of the CSNAT-I in the Danish SPC setting in 2018–2019. Data were obtained from the CSNAT (tool) completed by caregivers, from health care professionals’ (HCPs’) written documentation of the CSNAT-I, and from semi-structured interviews with HCPs. Results: The study population consisted of the 130 caregivers receiving a first CSNAT-I within 13 days of study enrolment, the 93 caregivers receiving a second CSNAT-I 15–27 days after enrolment, and the 44 HCPs delivering the intervention. Top three domains of unmet caregiver support needs reported in the CSNAT-I were: “knowing what to expect in the future,” “dealing with feelings and worries,” and “understanding the illness.” These domains together with “knowing who to contact if concerned” and “talking to the patient about the illness” were also the domains most frequently prioritised for discussion with HCPs. According to HCPs, most often support delivered directly by HCPs themselves during the actual contact (e.g., listening, advice, information) was sufficient. Overall, HCPs experienced the CSNAT-I as constructive and meaningful, and difficulties in delivering the intervention were rarely an issue. Conclusion: The support needs reported by caregivers confirm the relevance of the CSNAT-I. HCPs’ overall experiences of the clinical feasibility and relevance of the CSNAT-I were very positive. ClinicalTrials.gov ID: NCT03466580. Date of registration: March 1, 2018.

OriginalsprogEngelsk
TidsskriftSupportive Care in Cancer
Vol/bind30
Sider (fra-til)377-387
ISSN0941-4355
DOI
StatusUdgivet - jan. 2022

Bibliografisk note

Funding Information:
The study was funded by the Danish Cancer Society (Grant A8861) and the A.P. Moeller and Chastine Mc-Kinney Moeller Foundation (Grant 11692). The sponsors had no role in the study design, data collection, analysis, and interpretation of data, in the writing of the paper, or in the decision to submit the paper for publication.

Publisher Copyright:
© 2021, The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.

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