Patient perspectives and experience on the diagnostic pathway of lung cancer – a qualitative study

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Abstract

Background: Lung cancer is one of the most common types of cancer. Mortality is high and burden of symptoms significant. Assessment of the perceived quality of life is considered important during treatment but also during the diagnostic process owing to the high mortality of lung cancer. Knowledge and attention related to patients’ perspectives and expectations to the lung cancer diagnostic pathway are limited.Aim and objectives: To contribute with knowledge of patients’ experience and patient-assessed quality of lung cancer diagnostic pathwayTo develop management strategies for clinical practice in the lung cancer diagnostic pathway based on patients and health professionals' perspectivesMethods: A qualitative study comprising field observation following 20 patients during first visit of the lung cancer diagnostic pathway also semi-structured interviews with 19 patients were conducted. Data was analysed in collaboration with health professionals from the clinical practice looking for possibilities for developing management strategies based on patient’s perspectives.Results: Patients' described the diagnostic pathway as being affected by anxiety for the possibility of lung cancer diagnosis. The fear inhibited reception of information and changed their previous abilities. Although the patients were affected by anxiety, they still wanted the diagnostic path to be as fast as possible. The patient expressed the need for help from the nearest network, multiple levels and repeated information to cope with the diagnostic pathway.Conclusion: The patients’ perspective provided insight into the need for focus on anxiety, network involvement and focus on implementing different types of informationsFootnotesCite this article as: European Respiratory Journal 2018 52: Suppl. 62, PA1519.This is an ERS International Congress abstract. No full-text version is available. Further material to accompany this abstract may be available at www.ers-education.org (ERS member access only).
OriginalsprogDansk
TidsskriftEuropean Respiratory Journal
Vol/bind52
Udgave nummersuppl 62
Sider (fra-til)PA1519
ISSN0903-1936
DOI
StatusUdgivet - 15. sep. 2018
BegivenhedERS International Congress 2018 - Paris, Frankrig
Varighed: 15. sep. 201819. sep. 2018

Konference

KonferenceERS International Congress 2018
Land/OmrådeFrankrig
ByParis
Periode15/09/201819/09/2018

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