Patient and family perspectives on telepalliative care - Results of an intergrative review: Perspectives on palliative care

Publikation: Konferencebidrag uden forlag/tidsskriftPosterForskningpeer review


Background and Purpose: The adoption of telepalliative care as a supplement to standard care is growing, driven by increased digitalisation, lack of palliative care specialists, growing elderly populations, increased co-morbidities, and the recent Covid-19 pandemic. While knowledge is building on professionals’ and patients’ perspectives on telepalliative care, no review has examined telepalliative care from a patient and family perspective. Therefore, the purpose of this review is to examine patients and families’ perspectives on telepalliative care in order to create a model for telepalliative care.

A systematic integrative review was performed with searches in MEDLINE, EMBASE, CINAHL, and PsycINFO. Inclusion criteria were primary peer-reviewed studies, patient and family participants 18years+, all diagnoses, English and Danish languages, published 2011-2022. Reference lists were hand searched. Two reviewers performed independent screening and selection, and independent quality assessment using the Mixed-Methods Assessment Tool version 2020. Consensus was achieved through discussions and adjudication with a third reviewer.

Preliminary Results:
34 studies met the inclusion criteria. Most studies were from North America (n=17), followed by Europe (n=11), Africa (n=2), Asia (n=2), South America (n=1), and Australia (n=1). Data were analysed using inductive thematic analysis. Four themes were identified: 1) Adding value; for telepalliative care to be beneficial to patients and families, it has to provide a service that is meaningful to them. 2) Synchronous and asynchronous telepalliative care; can occur separately but are not mutually exclusive. 3) The importance of integrating telepalliative care with other services. 4) Timing and tailoring telepalliative care.

Conclusions and Implications:
As families are the main source of support, designing a model for telepalliative care should actively incorporate their and patients’ perspectives. A family-focused model of care guided by a framework for complex interventions in end-of-life care may help to achieve this. Further research should focus on professional and organisational aspects.
Publikationsdato21. jun. 2023
StatusUdgivet - 21. jun. 2023
Begivenhed16th International Family Nursing Conference (IFNC16): Global innovations in Family Nursing: Advancing Family Health - Dublin City University, School of Nursing, Glasnevin Campus, Dublin, Irland
Varighed: 20. jun. 202324. jun. 2023
Konferencens nummer: 16


Konference16th International Family Nursing Conference (IFNC16)
LokationDublin City University, School of Nursing, Glasnevin Campus


  • Telepalliative Care
  • Family Nursing
  • Intergrative Review