Parent-reported quality of life of children with cerebral palsy in Europe.

Catherine Arnaud, Melanie White-Koning, Susan I. Michelsen, Jackie Parkes, Kathryn Parkinson, Ute Thyen, Eva Beckung, Heather O Dickinson, Jerome Fauconnier, Marco Marcelli, Vicki McManus, Allan Colver

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Resumé

Udgivelsesdato: 2008-Jan
OriginalsprogEngelsk
TidsskriftPediatrics
Vol/bind121
Udgave nummer1
Sider (fra-til)54-64
Antal sider10
ISSN0031-4005
DOI
StatusUdgivet - 1. jan. 2008

Fingeraftryk

Cerebral Palsy
Quality of Life
Parents
Cross-Sectional Studies

Citer dette

Arnaud, C., White-Koning, M., I. Michelsen, S., Parkes, J., Parkinson, K., Thyen, U., ... Colver, A. (2008). Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics, 121(1), 54-64. https://doi.org/10.1542/peds.2007-0854
Arnaud, Catherine ; White-Koning, Melanie ; I. Michelsen, Susan ; Parkes, Jackie ; Parkinson, Kathryn ; Thyen, Ute ; Beckung, Eva ; Dickinson, Heather O ; Fauconnier, Jerome ; Marcelli, Marco ; McManus, Vicki ; Colver, Allan. / Parent-reported quality of life of children with cerebral palsy in Europe. I: Pediatrics. 2008 ; Bind 121, Nr. 1. s. 54-64.
@article{40997120474b11dd9fbe000ea68e967b,
title = "Parent-reported quality of life of children with cerebral palsy in Europe.",
abstract = "OBJECTIVE: The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy. METHODS: Our population-based, cross-sectional survey conducted in 2004 to 2005 involved 818 children with cerebral palsy, 8 to 12 years of age, from 7 countries (9 regions) in Europe. Child quality of life was assessed through parent reports by using the Kidscreen questionnaire, and data were analyzed separately for each of its 10 domains. RESULTS: The parental response rates were >93{\%} for all domains except one. Gross motor function and IQ level were found to be associated independently with quality of life in most domains. However, greater severity of impairment was not always associated with poorer quality of life; in the moods and emotions, self-perception, social acceptance, and school environment domains, less severely impaired children were more likely to have poor quality of life. Pain was associated with poor quality of life in the physical and psychological well-being and self-perception domains. Parents with higher levels of stress were more likely to report poor quality of life in all domains, which suggests that factors other than the severity of the child's impairment may influence the way in which parents report quality of life. CONCLUSIONS: The parent-reported quality of life for children with cerebral palsy is associated strongly with impairment. However, depending on the areas of life, the most severely impaired children (in terms of motor functioning or intellectual ability) do not always have the poorest quality of life.",
keywords = "Adaptation, Physiological, Adaptation, Psychological, Cerebral Palsy, Child, Cross-Sectional Studies, Developmental Disabilities, Disabled Children, Europe, Female, Humans, Linear Models, Logistic Models, Male, Parent-Child Relations, Quality of Life, Questionnaires, Severity of Illness Index, Sickness Impact Profile, Social Desirability, Social Support",
author = "Catherine Arnaud and Melanie White-Koning and {I. Michelsen}, Susan and Jackie Parkes and Kathryn Parkinson and Ute Thyen and Eva Beckung and Dickinson, {Heather O} and Jerome Fauconnier and Marco Marcelli and Vicki McManus and Allan Colver",
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Arnaud, C, White-Koning, M, I. Michelsen, S, Parkes, J, Parkinson, K, Thyen, U, Beckung, E, Dickinson, HO, Fauconnier, J, Marcelli, M, McManus, V & Colver, A 2008, 'Parent-reported quality of life of children with cerebral palsy in Europe.', Pediatrics, bind 121, nr. 1, s. 54-64. https://doi.org/10.1542/peds.2007-0854

Parent-reported quality of life of children with cerebral palsy in Europe. / Arnaud, Catherine; White-Koning, Melanie; I. Michelsen, Susan; Parkes, Jackie; Parkinson, Kathryn; Thyen, Ute; Beckung, Eva; Dickinson, Heather O; Fauconnier, Jerome; Marcelli, Marco; McManus, Vicki; Colver, Allan.

I: Pediatrics, Bind 121, Nr. 1, 01.01.2008, s. 54-64.

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

TY - JOUR

T1 - Parent-reported quality of life of children with cerebral palsy in Europe.

AU - Arnaud, Catherine

AU - White-Koning, Melanie

AU - I. Michelsen, Susan

AU - Parkes, Jackie

AU - Parkinson, Kathryn

AU - Thyen, Ute

AU - Beckung, Eva

AU - Dickinson, Heather O

AU - Fauconnier, Jerome

AU - Marcelli, Marco

AU - McManus, Vicki

AU - Colver, Allan

PY - 2008/1/1

Y1 - 2008/1/1

N2 - OBJECTIVE: The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy. METHODS: Our population-based, cross-sectional survey conducted in 2004 to 2005 involved 818 children with cerebral palsy, 8 to 12 years of age, from 7 countries (9 regions) in Europe. Child quality of life was assessed through parent reports by using the Kidscreen questionnaire, and data were analyzed separately for each of its 10 domains. RESULTS: The parental response rates were >93% for all domains except one. Gross motor function and IQ level were found to be associated independently with quality of life in most domains. However, greater severity of impairment was not always associated with poorer quality of life; in the moods and emotions, self-perception, social acceptance, and school environment domains, less severely impaired children were more likely to have poor quality of life. Pain was associated with poor quality of life in the physical and psychological well-being and self-perception domains. Parents with higher levels of stress were more likely to report poor quality of life in all domains, which suggests that factors other than the severity of the child's impairment may influence the way in which parents report quality of life. CONCLUSIONS: The parent-reported quality of life for children with cerebral palsy is associated strongly with impairment. However, depending on the areas of life, the most severely impaired children (in terms of motor functioning or intellectual ability) do not always have the poorest quality of life.

AB - OBJECTIVE: The goal was to determine whether the type and severity of the child's impairments and the family's psychosocial, social, and economic characteristics influence parent-reported child quality of life across the spectrum of severity of cerebral palsy. METHODS: Our population-based, cross-sectional survey conducted in 2004 to 2005 involved 818 children with cerebral palsy, 8 to 12 years of age, from 7 countries (9 regions) in Europe. Child quality of life was assessed through parent reports by using the Kidscreen questionnaire, and data were analyzed separately for each of its 10 domains. RESULTS: The parental response rates were >93% for all domains except one. Gross motor function and IQ level were found to be associated independently with quality of life in most domains. However, greater severity of impairment was not always associated with poorer quality of life; in the moods and emotions, self-perception, social acceptance, and school environment domains, less severely impaired children were more likely to have poor quality of life. Pain was associated with poor quality of life in the physical and psychological well-being and self-perception domains. Parents with higher levels of stress were more likely to report poor quality of life in all domains, which suggests that factors other than the severity of the child's impairment may influence the way in which parents report quality of life. CONCLUSIONS: The parent-reported quality of life for children with cerebral palsy is associated strongly with impairment. However, depending on the areas of life, the most severely impaired children (in terms of motor functioning or intellectual ability) do not always have the poorest quality of life.

KW - Adaptation, Physiological

KW - Adaptation, Psychological

KW - Cerebral Palsy

KW - Child

KW - Cross-Sectional Studies

KW - Developmental Disabilities

KW - Disabled Children

KW - Europe

KW - Female

KW - Humans

KW - Linear Models

KW - Logistic Models

KW - Male

KW - Parent-Child Relations

KW - Quality of Life

KW - Questionnaires

KW - Severity of Illness Index

KW - Sickness Impact Profile

KW - Social Desirability

KW - Social Support

U2 - 10.1542/peds.2007-0854

DO - 10.1542/peds.2007-0854

M3 - Journal article

VL - 121

SP - 54

EP - 64

JO - Pediatrics

JF - Pediatrics

SN - 0031-4005

IS - 1

ER -

Arnaud C, White-Koning M, I. Michelsen S, Parkes J, Parkinson K, Thyen U et al. Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics. 2008 jan 1;121(1):54-64. https://doi.org/10.1542/peds.2007-0854