Clinical trial or standard treatment? Shared decision making at the department of oncology.

Bidragets oversatte titel: Klinisk forsøg eller standard behandling? Shared desision making på onkologisk afdeling.

Publikation: Konferencebidrag uden forlag/tidsskriftKonferenceabstrakt til konferenceForskningpeer review

Resumé

Title:
Clinical trial or standard treatment? Shared decision making at the department of oncology.

Authors:
Ph.d. student, Trine A. Gregersen. Trine.gregersen@rsyd.dk. Department of Oncology. Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.
Professor, Regner Birkelund. Regner.birkelund@rsyd.dk. Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.
Professor, Jette Ammentorp. Jette.ammentorp@rsyd.dk.
Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.

Category
Research

Body
My training background is a Bachelor and Master of Science in Nursing. This project is my Ph.D. project which is supported by Region of Southern Denmark and Lillebaelt Hospital. The project started January 2016 and will be carried out at Department of Oncology at Vejle Hospital.

Background
Most cancer patients are involved in difficult treatment decisions including participation in clinical trials. The literature indicates that the decision is very often based on little knowledge about the treatment and that many patients who have consented to participate in a clinical trial are not always aware that they are participating in a trial. This place great demand on the healthcare providers’ ability to involve and advise patients in the decisions. The aim of this study is to investigate the characteristics of the communication when decisions about participation in clinical oncology trial are made and the patients’, relatives’ and healthcare providers’ experiences with regard to the decision about participating in a clinical trial.

Method
It is a qualitative study including 20 breast cancer patients, there relatives and healthcare providers. Data will be collected from: 1) Observation of conferences where patient treatment is discussed and of sessions where healthcare providers inform the patient about clinical trials. 2) Interviews with patients, relatives and healthcare providers. Data will be analyzed based on Steinar Kvales method for analyzing qualitative data focusing on meaning.

Preliminary findings
The preliminary findings indicate that the most important concern for the patient is survival. Participating in a trial seems to be experienced as another chance to cure the cancer.
The healthcare providers focus are on prolonging life and at the conferences where the patient’s treatment plan was discussed, focus was at the trial and the best treatment and not the patient’s life and values.

Preliminary implications of research
In a prestudy it has been difficult finding enough patients. We are considering expanding the patient group to other cancer patients and not only breast cancer patients.

Request for feedback
Analyzing field notes:
• How to write useful field notes?
• How to analyze field notes systematically?
• Using Nvivo when analyzing field notes and interviews?
OriginalsprogEngelsk
Publikationsdato2016
Antal sider1
StatusUdgivet - 2016

Citer dette

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title = "Clinical trial or standard treatment? Shared decision making at the department of oncology.",
abstract = "Title:Clinical trial or standard treatment? Shared decision making at the department of oncology.Authors:Ph.d. student, Trine A. Gregersen. Trine.gregersen@rsyd.dk. Department of Oncology. Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.Professor, Regner Birkelund. Regner.birkelund@rsyd.dk. Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.Professor, Jette Ammentorp. Jette.ammentorp@rsyd.dk.Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.CategoryResearchBody My training background is a Bachelor and Master of Science in Nursing. This project is my Ph.D. project which is supported by Region of Southern Denmark and Lillebaelt Hospital. The project started January 2016 and will be carried out at Department of Oncology at Vejle Hospital.BackgroundMost cancer patients are involved in difficult treatment decisions including participation in clinical trials. The literature indicates that the decision is very often based on little knowledge about the treatment and that many patients who have consented to participate in a clinical trial are not always aware that they are participating in a trial. This place great demand on the healthcare providers’ ability to involve and advise patients in the decisions. The aim of this study is to investigate the characteristics of the communication when decisions about participation in clinical oncology trial are made and the patients’, relatives’ and healthcare providers’ experiences with regard to the decision about participating in a clinical trial.MethodIt is a qualitative study including 20 breast cancer patients, there relatives and healthcare providers. Data will be collected from: 1) Observation of conferences where patient treatment is discussed and of sessions where healthcare providers inform the patient about clinical trials. 2) Interviews with patients, relatives and healthcare providers. Data will be analyzed based on Steinar Kvales method for analyzing qualitative data focusing on meaning. Preliminary findingsThe preliminary findings indicate that the most important concern for the patient is survival. Participating in a trial seems to be experienced as another chance to cure the cancer. The healthcare providers focus are on prolonging life and at the conferences where the patient’s treatment plan was discussed, focus was at the trial and the best treatment and not the patient’s life and values. Preliminary implications of researchIn a prestudy it has been difficult finding enough patients. We are considering expanding the patient group to other cancer patients and not only breast cancer patients. Request for feedback Analyzing field notes: • How to write useful field notes?• How to analyze field notes systematically? • Using Nvivo when analyzing field notes and interviews?",
author = "Gregersen, {Trine Ammentorp} and Regner Birkelund and Jette Ammentorp",
year = "2016",
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Clinical trial or standard treatment? Shared decision making at the department of oncology. / Gregersen , Trine Ammentorp ; Birkelund, Regner ; Ammentorp, Jette.

2016.

Publikation: Konferencebidrag uden forlag/tidsskriftKonferenceabstrakt til konferenceForskningpeer review

TY - ABST

T1 - Clinical trial or standard treatment? Shared decision making at the department of oncology.

AU - Gregersen , Trine Ammentorp

AU - Birkelund, Regner

AU - Ammentorp, Jette

PY - 2016

Y1 - 2016

N2 - Title:Clinical trial or standard treatment? Shared decision making at the department of oncology.Authors:Ph.d. student, Trine A. Gregersen. Trine.gregersen@rsyd.dk. Department of Oncology. Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.Professor, Regner Birkelund. Regner.birkelund@rsyd.dk. Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.Professor, Jette Ammentorp. Jette.ammentorp@rsyd.dk.Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.CategoryResearchBody My training background is a Bachelor and Master of Science in Nursing. This project is my Ph.D. project which is supported by Region of Southern Denmark and Lillebaelt Hospital. The project started January 2016 and will be carried out at Department of Oncology at Vejle Hospital.BackgroundMost cancer patients are involved in difficult treatment decisions including participation in clinical trials. The literature indicates that the decision is very often based on little knowledge about the treatment and that many patients who have consented to participate in a clinical trial are not always aware that they are participating in a trial. This place great demand on the healthcare providers’ ability to involve and advise patients in the decisions. The aim of this study is to investigate the characteristics of the communication when decisions about participation in clinical oncology trial are made and the patients’, relatives’ and healthcare providers’ experiences with regard to the decision about participating in a clinical trial.MethodIt is a qualitative study including 20 breast cancer patients, there relatives and healthcare providers. Data will be collected from: 1) Observation of conferences where patient treatment is discussed and of sessions where healthcare providers inform the patient about clinical trials. 2) Interviews with patients, relatives and healthcare providers. Data will be analyzed based on Steinar Kvales method for analyzing qualitative data focusing on meaning. Preliminary findingsThe preliminary findings indicate that the most important concern for the patient is survival. Participating in a trial seems to be experienced as another chance to cure the cancer. The healthcare providers focus are on prolonging life and at the conferences where the patient’s treatment plan was discussed, focus was at the trial and the best treatment and not the patient’s life and values. Preliminary implications of researchIn a prestudy it has been difficult finding enough patients. We are considering expanding the patient group to other cancer patients and not only breast cancer patients. Request for feedback Analyzing field notes: • How to write useful field notes?• How to analyze field notes systematically? • Using Nvivo when analyzing field notes and interviews?

AB - Title:Clinical trial or standard treatment? Shared decision making at the department of oncology.Authors:Ph.d. student, Trine A. Gregersen. Trine.gregersen@rsyd.dk. Department of Oncology. Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.Professor, Regner Birkelund. Regner.birkelund@rsyd.dk. Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.Professor, Jette Ammentorp. Jette.ammentorp@rsyd.dk.Health Services Research Unit Lillebaelt Hospital / IRS University of Southern Denmark.CategoryResearchBody My training background is a Bachelor and Master of Science in Nursing. This project is my Ph.D. project which is supported by Region of Southern Denmark and Lillebaelt Hospital. The project started January 2016 and will be carried out at Department of Oncology at Vejle Hospital.BackgroundMost cancer patients are involved in difficult treatment decisions including participation in clinical trials. The literature indicates that the decision is very often based on little knowledge about the treatment and that many patients who have consented to participate in a clinical trial are not always aware that they are participating in a trial. This place great demand on the healthcare providers’ ability to involve and advise patients in the decisions. The aim of this study is to investigate the characteristics of the communication when decisions about participation in clinical oncology trial are made and the patients’, relatives’ and healthcare providers’ experiences with regard to the decision about participating in a clinical trial.MethodIt is a qualitative study including 20 breast cancer patients, there relatives and healthcare providers. Data will be collected from: 1) Observation of conferences where patient treatment is discussed and of sessions where healthcare providers inform the patient about clinical trials. 2) Interviews with patients, relatives and healthcare providers. Data will be analyzed based on Steinar Kvales method for analyzing qualitative data focusing on meaning. Preliminary findingsThe preliminary findings indicate that the most important concern for the patient is survival. Participating in a trial seems to be experienced as another chance to cure the cancer. The healthcare providers focus are on prolonging life and at the conferences where the patient’s treatment plan was discussed, focus was at the trial and the best treatment and not the patient’s life and values. Preliminary implications of researchIn a prestudy it has been difficult finding enough patients. We are considering expanding the patient group to other cancer patients and not only breast cancer patients. Request for feedback Analyzing field notes: • How to write useful field notes?• How to analyze field notes systematically? • Using Nvivo when analyzing field notes and interviews?

M3 - Conference abstract for conference

ER -