In it for the long haul: a reflective account of collaborative involvement in aphasia research and education

Simon Horton*, David Barnston, Janice Barnston, Colin Bell, Joyce Bell, Chris Coath, Ian Duffy, Jytte Isaksen, Linda Watson

*Kontaktforfatter for dette arbejde

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review


Background: The involvement of service users and supporters/
advocates in healthcare education and healthcare research has
developed an increasingly high profile in recent years, but relatively
little is known about collaborations involving people with aphasia
and family members.
Aims: To reflect on and learn from the experience of collaboration,
examining the ways in which the involvement of people with
aphasia and family members was carried out over a fifteen-year
period in the context of a UK university.
Methods and procedures: We have taken a reflective longitudinal
case study approach, and used constructs from implementation
theory as sensitizing concepts in a cross-sectional analysis of documents in four key activities: the Conversation Partner scheme;
Reaching Further Out; Supported Communication to Improve
Participation in Rehabilitation; the Aphasia Research Collaboration.
We then produced narrative accounts which run through the whole
period of the study. Through this process, we as authors also
reflected on our own experiences of collaboration.
Outcomes and results: Conversation Partners (CP), integrated into
the speech and language therapy practice placement, was the basis
for almost all subsequent involvement. We deepened and strengthened the scope of the CP collaboration through funded workshops – Reaching Further Out – facilitated by Connect. Increasing
the visibility of our collaboration enabled us to attract institutional
support to develop our first major research undertaking, where
people with aphasia played a key role in highlighting the need for
the study, developing and implementing the intervention, taking
part in project oversight, and helping disseminate the findings. The
Aphasia Research Collaboration began as a partnership between
speech and language therapy students and people with aphasia
and has continued in various forms. Four narrative threads run
through the period of this study: the importance of systems and
people being adaptable; the contribution of leadership and commitment to continuity; a commitment to act and learn together; the
importance of understanding value
StatusE-pub ahead of print - 22. aug. 2021

Bibliografisk note

Publisher Copyright:
© 2021 Informa UK Limited, trading as Taylor & Francis Group.


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