Objectives: To examine patients’ and relatives’ experiences with participation in an online kidney school (OKS) and its influence on their choice of treatment modality; furthermore, to report on healthcare professionals’ (HCPs) first experiences with OKS. Methods: A mixed-methods design with parallel data collection involving two questionnaires for participants, including patients and relatives and a focus group discussion (FGD) with HCPs. Results: The OKS was feasible, and overall, patients and relatives were satisfied. Participation in the OKS increased the percentage of those who felt ready to make a decision regarding treatment. One over-arching theme (evolvement of the online kidney school over time) and three sub-themes (concerns and perceived barriers, facilitators, and benefits and future possibilities) emerged from the FGD. Conclusions: The OKS proved feasible, was well-accepted, and increased participants’ abilities to choose a preferred treatment modality. HCPs displayed initial concerns regarding the quality of the OKS and worried about the practicality of conducting the OKS. They experienced a feeling of something being lost. However, over time, HCPs developed strategies to tackle initial concerns and discovered that patients were more capable of participating than they had anticipated.
|Tidsskrift||International Journal of Environmental Research and Public Health|
|Status||Udgivet - jan. 2023|
Bibliografisk noteFunding Information:
Jan Dominik Kampmann received a grant from the Knud and Edith Eriksen Memorial Fund (no. 62786-2022) for this research project. Anders Nikolai Ørsted Schultz reports a relationship with LEO Pharma that includes employment. Anders Nikolai Ørsted Schultz reports personal fees from OpenTeleHealth aps., and a grant from the Knud and Edith Eriksen Memorial Fund outside the submitted work. Eithne Hayes Bauer received a grant from the Knud and Edith Eriksen Memorial Fund outside the submitted work.