Family ratings of ICU care. Is there concordance within families?

Hanne Irene Jensen*, Lois Downey, Matty Koopmans, J. Randall Curtis, Ruth A. Engelberg, Rik T. Gerritsen

*Kontaktforfatter for dette arbejde

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Resumé

Purpose: To examine heterogeneity of quality-of-care ratings within families and to examine possible predictors of concordance. Materials and methods: We examined two aspects of agreement within families: response similarity and the amount of exact concordance in responses in a cohort of Danish ICU family members participating in a questionnaire survey (the European Quality Questionnaire: euroQ2). Results: Two hundred seventy-four family respondents representing 122 patients were included in the study. Identical ratings between family members occurred in 28%–59% of families, depending upon the specific survey item. In a smaller sample of 28 families whose patients died, between 39% and 86% gave identical responses to items rating end-of-life care. There was more response variance within than between families, yielding low estimates of intrafamily correlation. Statistics correcting for chance agreement also suggested modest within-family agreement. Conclusions: The finding that variance is higher within than between families suggests the value of including multiple participants within a family in order to capture varying points of view.

OriginalsprogEngelsk
TidsskriftJournal of Critical Care
Vol/bind55
Sider (fra-til)108-115
Antal sider8
ISSN0883-9441
DOI
StatusUdgivet - 1. feb. 2020

Fingeraftryk

Quality of Health Care
Surveys and Questionnaires

Citer dette

Jensen, H. I., Downey, L., Koopmans, M., Curtis, J. R., Engelberg, R. A., & Gerritsen, R. T. (2020). Family ratings of ICU care. Is there concordance within families? Journal of Critical Care, 55, 108-115. https://doi.org/10.1016/j.jcrc.2019.10.011
Jensen, Hanne Irene ; Downey, Lois ; Koopmans, Matty ; Curtis, J. Randall ; Engelberg, Ruth A. ; Gerritsen, Rik T. / Family ratings of ICU care. Is there concordance within families?. I: Journal of Critical Care. 2020 ; Bind 55. s. 108-115.
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Jensen, HI, Downey, L, Koopmans, M, Curtis, JR, Engelberg, RA & Gerritsen, RT 2020, 'Family ratings of ICU care. Is there concordance within families?', Journal of Critical Care, bind 55, s. 108-115. https://doi.org/10.1016/j.jcrc.2019.10.011

Family ratings of ICU care. Is there concordance within families? / Jensen, Hanne Irene; Downey, Lois; Koopmans, Matty; Curtis, J. Randall; Engelberg, Ruth A.; Gerritsen, Rik T.

I: Journal of Critical Care, Bind 55, 01.02.2020, s. 108-115.

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

TY - JOUR

T1 - Family ratings of ICU care. Is there concordance within families?

AU - Jensen, Hanne Irene

AU - Downey, Lois

AU - Koopmans, Matty

AU - Curtis, J. Randall

AU - Engelberg, Ruth A.

AU - Gerritsen, Rik T.

PY - 2020/2/1

Y1 - 2020/2/1

N2 - Purpose: To examine heterogeneity of quality-of-care ratings within families and to examine possible predictors of concordance. Materials and methods: We examined two aspects of agreement within families: response similarity and the amount of exact concordance in responses in a cohort of Danish ICU family members participating in a questionnaire survey (the European Quality Questionnaire: euroQ2). Results: Two hundred seventy-four family respondents representing 122 patients were included in the study. Identical ratings between family members occurred in 28%–59% of families, depending upon the specific survey item. In a smaller sample of 28 families whose patients died, between 39% and 86% gave identical responses to items rating end-of-life care. There was more response variance within than between families, yielding low estimates of intrafamily correlation. Statistics correcting for chance agreement also suggested modest within-family agreement. Conclusions: The finding that variance is higher within than between families suggests the value of including multiple participants within a family in order to capture varying points of view.

AB - Purpose: To examine heterogeneity of quality-of-care ratings within families and to examine possible predictors of concordance. Materials and methods: We examined two aspects of agreement within families: response similarity and the amount of exact concordance in responses in a cohort of Danish ICU family members participating in a questionnaire survey (the European Quality Questionnaire: euroQ2). Results: Two hundred seventy-four family respondents representing 122 patients were included in the study. Identical ratings between family members occurred in 28%–59% of families, depending upon the specific survey item. In a smaller sample of 28 families whose patients died, between 39% and 86% gave identical responses to items rating end-of-life care. There was more response variance within than between families, yielding low estimates of intrafamily correlation. Statistics correcting for chance agreement also suggested modest within-family agreement. Conclusions: The finding that variance is higher within than between families suggests the value of including multiple participants within a family in order to capture varying points of view.

KW - Concordance

KW - EuroQ2

KW - Family ratings of quality of care

KW - Intensive care

KW - Surveys

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U2 - 10.1016/j.jcrc.2019.10.011

DO - 10.1016/j.jcrc.2019.10.011

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