Expectations and Experiences of Patients Recently Initiated to Centre-Based Dialysis Treatment

Johan Frederik Lillebø Alsing, Eithne Hayes Bauer, Frans Brandt, Jan Dominik Kampmann*

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Abstrakt

BackgroundExisting studies display a huge disparity in terms of the number of patients who regret having engaged in dialysis. Modifiable care processes such as providing sufficient information and education prior to decision-making have been shown to have a greater impact on patient satisfaction. Despite the importance of regret as a measure of the quality of the dialysis decision-making process, few studies have examined regret following dialysis initiation. Aim: To explore the expectations and experiences of patients who have recently started centre-based dialysis treatment. Methods: A qualitative explorative study of centre-based dialysis patients was performed. Data were collected using focus group discussions of 2–4 patients. The study was guided by interpretive description and thematic analysis was used to analyse data. Results: Three focus group discussions were performed. Participants (n = 8) consisted of six men and two women aged 54 to 80 years of age with a median age of 72. Three themes emerged from the data: 1. transition from being a non-dialysis patient to becoming a dialysis patient, 2. physical condition following initiation of dialysis treatment, and 3. limitations and social disruptions. Conclusion: The initiation of dialysis disrupted daily life in terms of fluctuating fatigue, strict schedules, and time lost. There was a loss of independence, and participants did not view dialysis as an active choice. Nurses may have a significant impact on the perception of dialysis. This study highlights the need for further research to develop interventions to support newly initiated centre-based dialysis patients to transition from non-dialysis to dialysis patients.

OriginalsprogEngelsk
Artikelnummer897
TidsskriftHealthcare (Switzerland)
Vol/bind10
Udgave nummer5
Antal sider11
ISSN2227-9032
DOI
StatusUdgivet - 12. maj 2022

Bibliografisk note

Funding Information:
The authors would like to thank the participants in this study, and the healthcare professionals at the dialysis ward, Internal Medicine Department, University Hospital of South Denmark, Sygehus Soenderjylland, who facilitated data collection.

Publisher Copyright:
© 2022 by the authors. Licensee MDPI, Basel, Switzerland.

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