Care experiences of young people with eating disorders and their parents: qualitative study

Oana Mitrofan, Hristina Petkova, Astrid Janssens, Jonathan Kelly, Eve Edwards, Dasha Nicholls, Fiona McNicholas, Mima Simic, Ivan Eisler, Tamsin Ford, Sarah Byford

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Abstrakt

BACKGROUND: Perspectives of young people with eating disorders and their parents on helpful aspects of care should be incorporated into evidence-based practice and service design, but data are limited.AimsTo explore patient and parent perspectives on positive and negative aspects of care for young people with eating disorders.

METHOD: Six online focus groups with 19 young people aged 16-25 years with existing or past eating disorders and 11 parents.

RESULTS: Thematic analysis identified three key themes: the need to (a) shift from a weight-focused to a more holistic, individualised and consistent care approach, with a better balance in targeting psychological and physical problems from an early stage; (b) improve professionals' knowledge and attitude towards patients and their families at all levels of care from primary to 'truly specialist'; (c) enhance peer and family support.

CONCLUSIONS: Young people and parents identified an array of limitations in approaches to care for young people with eating disorders and raised the need for change, particularly a move away from a primarily weight-focused treatment and a stronger emphasis on psychological needs and individualised care.Declaration of interestNone.

OriginalsprogEngelsk
Artikelnummere6
TidsskriftBJPsych Open
Vol/bind5
Udgave nummer1
Antal sider8
ISSN2056-4724
DOI
StatusUdgivet - jan. 2019
Udgivet eksterntJa

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Citationsformater

Mitrofan, O., Petkova, H., Janssens, A., Kelly, J., Edwards, E., Nicholls, D., McNicholas, F., Simic, M., Eisler, I., Ford, T., & Byford, S. (2019). Care experiences of young people with eating disorders and their parents: qualitative study. BJPsych Open, 5(1), [e6]. https://doi.org/10.1192/bjo.2018.78