Accommodating to a troubled life – chronic obstructive pulmonary disease patients’ experiences and perceptions of self-image during the course of rehabilitation

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Resumé

Background: To tailor future rehabilitation programmes for patients with chronic pulmonary obstructive
disease, there is a need for more in-depth knowledge about what is essential to these patients and how
they perceive their self-image while participating in rehabilitation. Therefore, this study aims to explore
patients’ experiences and perception of self-image during pulmonary rehabilitation.
Methods: Twenty-one patients were followed by participant observations during standard rehabilitation
complicity supplemented with final individual interviews. Phenomenological-hermeneutic analysis and
interpretation were applied.
Results: Through a rewarding peer fellowship, patients became engaged in rehabilitation and improved
their capacity to embrace and manage their illness. Through a humorous interplay, encouragement to
live with the life-threating disease developed. While understanding themselves in a wider perspective,
patients enhanced enablement to shape life according to personal satisfaction. Although participating in
the group-based programme was mostly invigorating, it was, however, sometimes perceived as a stressful
overload. More individualized support from healthcare professionals was warrented.
Conclusions: Group-based pulmonary rehabilitation can support chronic pulmonary obstructive disease
patients towards significant change in self-image and health behaviour, leading to improved illness management.
Enlarged opportunities to benefit from peer-fellowship and enhanced focus on what is essential
to the participants might expand the rehabilitation yields.
OriginalsprogEngelsk
TidsskriftDisability and Rehabilitation
Antal sider10
ISSN0963-8288
DOI
StatusE-pub ahead of print - 14. feb. 2019

Citer dette

@article{0a5d23d1b2ed42f18b8854b130fc9c13,
title = "Accommodating to a troubled life – chronic obstructive pulmonary disease patients’ experiences and perceptions of self-image during the course of rehabilitation",
abstract = "Background: To tailor future rehabilitation programmes for patients with chronic pulmonary obstructivedisease, there is a need for more in-depth knowledge about what is essential to these patients and howthey perceive their self-image while participating in rehabilitation. Therefore, this study aims to explorepatients’ experiences and perception of self-image during pulmonary rehabilitation.Methods: Twenty-one patients were followed by participant observations during standard rehabilitationcomplicity supplemented with final individual interviews. Phenomenological-hermeneutic analysis andinterpretation were applied.Results: Through a rewarding peer fellowship, patients became engaged in rehabilitation and improvedtheir capacity to embrace and manage their illness. Through a humorous interplay, encouragement tolive with the life-threating disease developed. While understanding themselves in a wider perspective,patients enhanced enablement to shape life according to personal satisfaction. Although participating inthe group-based programme was mostly invigorating, it was, however, sometimes perceived as a stressfuloverload. More individualized support from healthcare professionals was warrented.Conclusions: Group-based pulmonary rehabilitation can support chronic pulmonary obstructive diseasepatients towards significant change in self-image and health behaviour, leading to improved illness management.Enlarged opportunities to benefit from peer-fellowship and enhanced focus on what is essentialto the participants might expand the rehabilitation yields.",
keywords = "Chronic obstructive pulmonary disease (COPD), pulmonary rehabilitation, Multimorbidity, outpatient care, peer-fellowship, humour, health behaviour, participant observations, Pulmonary rehabilitation, interviews",
author = "Charlotte Simon{\"y} and Andersen, {Ingrid Charlotte} and Uffe B{\o}dtger and Regner Birkelund",
year = "2019",
month = "2",
day = "14",
doi = "10.1080/09638288.2018.1563641",
language = "English",
journal = "Disability and Rehabilitation",
issn = "0963-8288",
publisher = "Taylor & Francis",

}

TY - JOUR

T1 - Accommodating to a troubled life – chronic obstructive pulmonary disease patients’ experiences and perceptions of self-image during the course of rehabilitation

AU - Simonÿ, Charlotte

AU - Andersen, Ingrid Charlotte

AU - Bødtger, Uffe

AU - Birkelund, Regner

PY - 2019/2/14

Y1 - 2019/2/14

N2 - Background: To tailor future rehabilitation programmes for patients with chronic pulmonary obstructivedisease, there is a need for more in-depth knowledge about what is essential to these patients and howthey perceive their self-image while participating in rehabilitation. Therefore, this study aims to explorepatients’ experiences and perception of self-image during pulmonary rehabilitation.Methods: Twenty-one patients were followed by participant observations during standard rehabilitationcomplicity supplemented with final individual interviews. Phenomenological-hermeneutic analysis andinterpretation were applied.Results: Through a rewarding peer fellowship, patients became engaged in rehabilitation and improvedtheir capacity to embrace and manage their illness. Through a humorous interplay, encouragement tolive with the life-threating disease developed. While understanding themselves in a wider perspective,patients enhanced enablement to shape life according to personal satisfaction. Although participating inthe group-based programme was mostly invigorating, it was, however, sometimes perceived as a stressfuloverload. More individualized support from healthcare professionals was warrented.Conclusions: Group-based pulmonary rehabilitation can support chronic pulmonary obstructive diseasepatients towards significant change in self-image and health behaviour, leading to improved illness management.Enlarged opportunities to benefit from peer-fellowship and enhanced focus on what is essentialto the participants might expand the rehabilitation yields.

AB - Background: To tailor future rehabilitation programmes for patients with chronic pulmonary obstructivedisease, there is a need for more in-depth knowledge about what is essential to these patients and howthey perceive their self-image while participating in rehabilitation. Therefore, this study aims to explorepatients’ experiences and perception of self-image during pulmonary rehabilitation.Methods: Twenty-one patients were followed by participant observations during standard rehabilitationcomplicity supplemented with final individual interviews. Phenomenological-hermeneutic analysis andinterpretation were applied.Results: Through a rewarding peer fellowship, patients became engaged in rehabilitation and improvedtheir capacity to embrace and manage their illness. Through a humorous interplay, encouragement tolive with the life-threating disease developed. While understanding themselves in a wider perspective,patients enhanced enablement to shape life according to personal satisfaction. Although participating inthe group-based programme was mostly invigorating, it was, however, sometimes perceived as a stressfuloverload. More individualized support from healthcare professionals was warrented.Conclusions: Group-based pulmonary rehabilitation can support chronic pulmonary obstructive diseasepatients towards significant change in self-image and health behaviour, leading to improved illness management.Enlarged opportunities to benefit from peer-fellowship and enhanced focus on what is essentialto the participants might expand the rehabilitation yields.

KW - Chronic obstructive pulmonary disease (COPD)

KW - pulmonary rehabilitation

KW - Multimorbidity

KW - outpatient care

KW - peer-fellowship

KW - humour

KW - health behaviour

KW - participant observations

KW - Pulmonary rehabilitation

KW - interviews

U2 - 10.1080/09638288.2018.1563641

DO - 10.1080/09638288.2018.1563641

M3 - Journal article

JO - Disability and Rehabilitation

JF - Disability and Rehabilitation

SN - 0963-8288

ER -