Astrid Janssens

2025

‘I’m very open about it if people ask’: Selective sharing, seeking community and careful censoring in women’s epistemic practices surrounding childbirth experiences

Høstrup, L. H., Cordes, L., Corneliussen, J. G., Pedersen, J. Ø., Sørensen, K. C. K., Thualagant, N., Schrøder, K. & Janssens, A., 21. apr. 2025, I: Health.

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2024

An auto-ethnographic study of co-produced health research in a patient organisation: unpacking the good, the bad, and the unspoken

Janssens, A., Drachmann, D., Barnes-Cullen, K., Carrigg, A., Christesen, H. T., Futers, B., Lavery, Y. O., Palms, T., Petersen, J. S., Shah, P., Thornton, P. & Wolfsdorf, J., dec. 2024, I: Research Involvement and Engagement. 10, 1, 15 s., 76.

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Development of a rehabilitation programme for young adult cancer survivors using co-production

Aagesen, M., Pilegaard, M. S., Janssens, A., Hauken, M. A. & Cour, K. L., 20. dec. 2024, I: Research Involvement and Engagement. 10, 1, 16 s., 134.

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In the footstep of the old patient from hospital to home: A qualitative field observation study

Beck, S. H., Eilertsen, G., Andersen-Ranberg, K., Janssens, A. & Nielsen, D. S., sep. 2024, I: Scandinavian Journal of Caring Sciences. 38, 3, s. 745-755

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Introducing patient stories in health sciences education: the learning experiences of students

Janssens, A., Børgesen, K., Kragh-Sørensen, A., Jensen, J. L., Nürnberg, H. & Hoeck, B., 15. sep. 2024, I: BMC Medical Education. 24, 11 s., 1008.

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Non-participation in a health examination survey in a rural-provincial area of Denmark – results from the Lolland-Falster Health Study (LOFUS): results from the Lolland-Falster Health Study (LOFUS)

LYNGSØE, S., LOPHAVEN, S., JEPSEN, R., HOLMAGER, T., JANSSENS, A. & LYNGE, E., dec. 2024, I: Scandinavian Journal of Public Health. 52, 8, s. 951-959

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Reflections on co-creating a model for the value assessment of artificial intelligence technologies

Karlsson, A. W., Janssens, A., Barkler, A., Schmidt, T., Rasmussen, B. S. B. & Fasterholdt, I., 24. aug. 2024, (E-pub ahead of print) I: Scandinavian Journal of Public Health.

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Suicidal Thoughts and Behaviors in Parents Caring for Children with Disabilities and Long-Term Illnesses

O'Dwyer, S. T., Sansom, A., Mars, B., Reakes, L., Andrewartha, C., Melluish, J., Walker, A., Biddle, L., Slater, T., Burrows, D., Hastings, R. P., Moran, P., Stallard, P. & Janssens, A., 1. jul. 2024, (E-pub ahead of print) I: Archives of Suicide Research.

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Wider institutional research cultures and their influence on patient and public involvement and engagement in health research: An institutional ethnography

Karlsson, A. W., Kragh-Sørensen, A., Børgesen, K., Behrens, K. E., Andersen, T., Maglekær, K. M., Rothmann, M. J., Ketelaar, M., Petersen, E. N. & Janssens, A., apr. 2024, I: Social Science and Medicine. 347, 10 s., 116773.

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“I’m very open about it if people ask”: Dosing detail, seeking community and careful censoring in women’s epistemic practices surrounding childbirth experiences

Høstrup, L. H., Ørskov Pedersen, J., Grøn Corneliussen, J., Cordes, L., Cecilie K. Sørensen, K., Schrøder, K., Thualagant, N. & Janssens, A., 2024.

Publikation: Konferencebidrag uden forlag/tidsskrift › Poster › Formidling

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2023

Developing a rehabilitation programme for young adult cancer survivors

Aagesen, M., la Cour, K., Pilegaard, M. S., Hauken, M. A. & Janssens, A., 23. mar. 2023.

Publikation: Konferencebidrag uden forlag/tidsskrift › Poster › Formidling

Educational experiences of young people with ADHD in the UK: Secondary analysis of qualitative data from the CATCh‐uS mixed‐methods study

Russell, A. E., Benham‐Clarke, S., Ford, T., Eke, H., Price, A., Mitchell, S., Newlove‐Delgado, T., Moore, D. & Janssens, A., dec. 2023, I: British Journal of Educational Psychology. 93, 4, s. 941-959

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Healthy relationship education programmes for young people: systematic review of outcomes

Benham-Clarke, S., Roberts, G., Janssens, A. & Newlove-Delgado, T., 2023, I: Pastoral Care in Education. 41, 3, s. 266-288

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How to support implementation of the ambitious strategy “to actively involve patients and relatives in all parts of the research process” at Odense University Hospital

Lykke Jensen, J., Janssens, A., Kragh-Sørensen, A., Friis Olsen, A., Nielsen, D. S., Kidholm, K., Søe, K., Lærkner, E. A., Karlsson, A. T., Hinnerup Hartmeyer, L. & Agerskov, H., 25. apr. 2023.

Publikation: Konferencebidrag uden forlag/tidsskrift › Poster › Formidling

Mothers' Views on the Storage and Usage of Their Children's Biological Material Under the Danish Biobanking Model: A Narrative Approach Using Epistemic Injustice

Karlsson, A. W., Lundsgaard, H. H. & Janssens, A., sep. 2023, I: Value in Health. 26, 9, s. 1308-1313

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Parenting roles for young people with attention-deficit/hyperactivity disorder transitioning to adult services

Janssens, A., Blake, S., Eke, H., Price, A. & Ford, T., jan. 2023, I: Developmental Medicine and Child Neurology. 65, 1, s. 136-144

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Patient and public involvement and engagement (PPIE) in healthcare education and thesis work: the first step towards PPIE knowledgeable healthcare professionals

Karlsson, A. W. & Janssens, A., 5. jan. 2023, I: BMJ Open. 13, 1, e067588.

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Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research

Karlsson, A. W., Kragh-Sørensen, A., Børgesen, K., Behrens, K. E., Andersen, T., Kidholm, M. L., Rothmann, M. J., Ketelaar, M. & Janssens, A., 15. jun. 2023, I: Research Involvement and Engagement. 9, 1, 27 s., 43.

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Sharing our perspectives makes the difference - The co-creation of a PhD project with patients and relatives

Wettergren Karlsson, A., Janssens, A. & The Partner Panel, 28. dec. 2023, I: International Journal of Integrated Care. 23, S1, 120.

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Stort udbytte af patienter som gæsteforskere og aktive i undervisningen

Janssens, A., Karlsson, A. T., Hoeck, B. & Kidholm, M. L., 23. mar. 2023, Dansk Selskab for Ledelse i Sundhedsvæsenet.

Publikation: Andet › Udgivelser på nettet - Net-publikation › Formidling

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Through ‘thick and thin’ as long as it is healthy: shared meanings of commitment in long-term couple relationships, whether married or not

Blake, S. & Janssens, A., 2023, I: Journal of Family Studies. 29, 2, s. 595-611

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2022

Co-development of a value-based Code of Conduct: Patients, relatives and researchers working together to create guidelines for meaningful involvement in health research

Karlsson, A. W., Langhoff, A., Janssens, A. & Hoeck, B., 2022, I: International Journal of Integrated Care. 22, Suppl. 3, 1 s.

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In transition with attention deficit hyperactivity disorder (ADHD): children’s services clinicians’ perspectives on the role of information in healthcare transitions for young people with ADHD

Price, A., Mitchell, S., Janssens, A., Eke, H., Ford, T. & Newlove-Delgado, T., 9. apr. 2022, I: BMC Psychiatry. 22, 14 s., 251.

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Ketotic hypoglycemia in patients with Down syndrome: an example of extreme citizen science in biomedicine

Drachmann, D., Carrigg, A., Weinstein, D. A., Petersen, J., Janssens, A. & Christesen, H. T., 16. dec. 2022, I: Proceedings of Science. 418, 045.

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Level of Care Determination: The Child and Adolescent Service Intensity Instrument (Dutch Version)

Janssens, A., Van Dongen, T., Glazemakers, I., Uvin, K., Pumariega, A. J. & Deboutte, D., aug. 2022, I: World Social Psychiatry. 4, 2, s. 139-151

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Partnerships in Health Research. A Protocol for an Institutional Ethnography

Karlsson, A. T., Rothmann, M. J., Ketelaar, M. & Janssens, A., 17. mar. 2022, 4 s. The Open Science Framework.

Publikation: Andet › Udgivelser på nettet - Net-publikation › Forskning

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Why young people stop taking their attention deficit hyperactivity disorder medication: A thematic analysis of interviews with young people

Titheradge , D., Godfrey, J., Eke, H., Price, A., Ford, T. & Janssens, A., sep. 2022, I: Child: Care, Health and Development. 48, 5, s. 724-735

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2021

Adverse events as transitional markers - Using liminality to understand experiences of second victims

Schrøder, K., Janssens, A. & Assing Hvidt, E., jan. 2021, I: Social Science & Medicine. 268, 113598.

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Attainment, attendance, and school difficulties in UK primary schoolchildren with probable ADHD

May, F., Ford, T., Janssens, A., Newlove-Delgado, T., Emma Russell, A., Salim, J., Ukoumunne, O. C. & Hayes, R., mar. 2021, I: British Journal of Educational Psychology. 91, 1, s. 442-462

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Conscious coupling: loss of public promises of a life-long bond? An exploration of authenticity and autonomy in commitment processes across contemporary long-term relationship forms

Blake, S. & Janssens, A., nov. 2021, I: Families, Relationships and Societies. 10, 3, s. 395-412

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Partnerships within coproduced health research - a rapid review protocol

Karlsson, A. W., Kragh-Sørensen, A., Rothmann, M. J., Ketelaar, M. & Janssens, A., 25. nov. 2021, Open Science Framework.

Publikation: Andet › Udgivelser på nettet - Net-publikation › Forskning

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Reflections on Joint and Individual interviews with Couples: A Multi-level Interview Mode

Blake, S., Janssens, A., Ewing, J. & Barlow, A., 2021, I: International Journal of Qualitative Methods. 20, 11 s.

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Role of Education Settings in Transition from Child to Adult Health Services for Young People with ADHD

Benham-Clarke, S., Ford, T., Mitchell, S. B., Price, A., Newlove-Delgado, T., Blake, S., Eke, H., Moore, D. A., Russell, A. E. & Janssens, A., 20. sep. 2021, I: Emotional and Behavioural Difficulties. 26, 4, s. 341-358

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Suicidality in family caregivers of people with long-term illnesses and disabilities: A scoping review

O’Dwyer, S. T., Janssens, A., Sansom, A., Biddle, L., Mars, B., Slater, T., Moran, P., Stallard,, P., Melluish, J., Reakes, L., Walker, A., Andrewartha, C. & Hastings, R. P., okt. 2021, I: Comprehensive Psychiatry. 110, 152261.

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2020

Case ascertainment in active paediatric surveillance systems: a report from the British Paediatric Surveillance Unit Ascertainment Group

Lynn, R. M., Reading, R., BPSU Ascertainment Group & Janssens, A. (Medlem af forfattergruppering), jan. 2020, I: Archives of Disease in Childhood. 105, 1, s. 62-68

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Clinician perspectives on the use of National Institute for Health and Care Excellence guidelines for the process of transition in Attention Deficit Hyperactivity Disorder

Eke, H., Janssens, A., Newlove-Delgado, T., Paul, M., Price, A., Young, S. & Ford, T. J., jan. 2020, I: Child: Care, Health and Development. 46, 1, s. 111-120

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Exploring the content and delivery of relationship skills education programmes for adolescents: a systematic review

Janssens, A., Blake, S., Allwood, M., Ewing, J. & Barlow, A., 13. dec. 2020, I: Sex Education: Sexuality, Society and Learning. 20, 5, s. 494-516

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First Steps towards Patient-Led Education: The Case of a Post-Graduate Model at a Danish University

Janssens, A. & Hoeck, B., 2020.

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Mapping UK mental health services for adults with attention-deficit/hyperactivity disorder: national survey with comparison of reporting between three stakeholder groups

Price, A., Janssens, A., Newlove-Delgado, T., Eke, H., Paul, M., Sayal, K., Hollis, C., Ani, C., Young, S., Dunn-Morua, S., Asherson, P., Logan, S. & Ford, T., 29. jul. 2020, I: BJPsych Open. 6, 4, e76.

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Regional analysis of UK primary care prescribing and adult service referrals for young people with attention-deficit hyperactivity disorder

Price, A., Ford, T., Janssens, A., Williams, A. J. & Newlove-Delgado, T., 6. jan. 2020, I: BJPsych Open. 6, 1, s. e7 6 s., e7.

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The transition from children's services to adult services for young people with attention deficit hyperactivity disorder: the CATCh-uS mixed-methods study

Janssens, A., Eke, H., Price, A., Newlove-Delgado, T., Blake, S., Ani, C., Asherson, P., Beresford, B., Emmens, T., Hollis, C., Logan, S., Paul, M., Sayal, K., Young, S. & Ford, T., nov. 2020, I: Health Services and Delivery Research. 8, 42

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Transition between child and adult services for young people with attention-deficit hyperactivity disorder (ADHD): findings from a British national surveillance study

Eke, H., Ford, T., Newlove-Delgado, T., Price, A., Young, S., Ani, C., Sayal, K., Lynn, R. M., Paul, M. & Janssens, A., nov. 2020, I: British Journal of Psychiatry. 217, 5, s. 616-622 7 s.

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Working Out Relationships: Research, Education, and the Quest for Lasting Love

Ewing, J., Barlow, A., Blake, S. & Janssens, A., 2020, I: Child and Family Law Quarterly. 32, 4, s. 331-354

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2019

Adolescent self-harm prevention and intervention in secondary schools: a survey of staff in England and Wales

Evans, R., Parker, R., Russell, A. E., Mathews, F., Ford, T., Hewitt, G., Scourfield, J. & Janssens, A., sep. 2019, I: Child and Adolescent Mental Health. 24, 3, s. 230-238

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Care experiences of young people with eating disorders and their parents: qualitative study

Mitrofan, O., Petkova, H., Janssens, A., Kelly, J., Edwards, E., Nicholls, D., McNicholas, F., Simic, M., Eisler, I., Ford, T. & Byford, S., jan. 2019, I: BJPsych Open. 5, 1, 8 s., e6.

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How to measure the need for transition to adult services among young people with Attention Deficit Hyperactivity Disorder (ADHD): A comparison of surveillance versus case note review methods

Eke, H., Janssens, A., Downs, J., Lynn, R. M., Ani, C. & Ford, T., aug. 2019, I: BMC Medical Research Methodology. 19, 1, 9 s., 179.

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In transition with ADHD: the role of information, in facilitating or impeding young people's transition into adult services

Price, A., Newlove-Delgado, T., Eke, H., Paul, M., Young, S., Ford, T. & Janssens, A., 17. dec. 2019, I: BMC Psychiatry. 19, 16 s., 404.

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Resumption of Attention Deficit Hyperactivity Disorder medication in early adulthood: findings from a UK primary care prescribing study

Newlove-Delgado, T., Ford, T., Hamilton, W., Janssens, A., Stein, K. & Ukoumunne, O., dec. 2019, I: European Child & Adolescent Psychiatry. 28, 12, s. 1589-1596

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Review: Experiences of healthcare transitions for young people with attention deficit hyperactivity disorder: a systematic review of qualitative research

Price, A., Janssens, A., Woodley, A. L., Allwood, M. & Ford, T., 1. maj 2019, I: Child and Adolescent Mental Health. 24, 2, s. 113-122

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Review: Transition from children's to adult services: a review of guidelines and protocols for young people with attention deficit hyperactivity disorder in England

Eke, H., Janssens, A. & Ford, T., 1. maj 2019, I: Child and Adolescent Mental Health. 24, 2, s. 123-132

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Astrid Janssens

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